Hi everyone, Thanks to Pen for directing me to the your story section, just a few lines to introduce myself.
I'm Derek 48 Dublin Ireland, Diagnosed Crohn's 1995, Had a rough time through the early years, guess getting diagnosed was the hardest, trying this drug not working, trying another, not working and so on, I'm sure a lot of you can relate to that.I had my share of Abscess and Fissures and Fistula's, Colonoscopy after Colonoscopy, sometimes i used to think the doctors were trying to justify their existence, don't mean that to sound disrespectful. The past three years have not only been hard for me but for my wife and children, I've been a prisoner in my own home from not been able to leave the bathroom, that's something else I'm sure a lot of you can relate to, trying to keep this as short as possible, April-May of this year (2011) i had a double flare up, went through the usual, in patient on IV Steroids, the the endless list of Meds that go along with it, got out of hospital after ten days, this time i had the "Wonder Drug" to take home with me "HUMIRA" well sadly it didn't do any wonders for me, so the decision was made that I'd go for surgery, Sept 13Th 2011, after two cancellations i finally went for surgery, had 60% of my large bowel taken away, the also took away my back passage and it's contents, stitched it up, and fitted me with a colostomy, I'm seven weeks today over the surgery and with my hand on my heart I've never felt so much post surgery pain in my life, time has moved on and i do feel somewhat better, albeit after juggling the dosage of Meds so that i could communicate with people and not spend all my days sleeping. I think i should stop now ) I hope someone can relate to my story and if i can answer any questions about the surgery i had I'll be only too happy to oblige. For now, god bless you all and take care.
Derek
Diagnosed Crohn's 1995
Colo Rectal Surgery Sept 13th 2011
Meds Imuran 100mg
MST 10mg BD
Oxynorm 10mg PRN
I'm Derek 48 Dublin Ireland, Diagnosed Crohn's 1995, Had a rough time through the early years, guess getting diagnosed was the hardest, trying this drug not working, trying another, not working and so on, I'm sure a lot of you can relate to that.I had my share of Abscess and Fissures and Fistula's, Colonoscopy after Colonoscopy, sometimes i used to think the doctors were trying to justify their existence, don't mean that to sound disrespectful. The past three years have not only been hard for me but for my wife and children, I've been a prisoner in my own home from not been able to leave the bathroom, that's something else I'm sure a lot of you can relate to, trying to keep this as short as possible, April-May of this year (2011) i had a double flare up, went through the usual, in patient on IV Steroids, the the endless list of Meds that go along with it, got out of hospital after ten days, this time i had the "Wonder Drug" to take home with me "HUMIRA" well sadly it didn't do any wonders for me, so the decision was made that I'd go for surgery, Sept 13Th 2011, after two cancellations i finally went for surgery, had 60% of my large bowel taken away, the also took away my back passage and it's contents, stitched it up, and fitted me with a colostomy, I'm seven weeks today over the surgery and with my hand on my heart I've never felt so much post surgery pain in my life, time has moved on and i do feel somewhat better, albeit after juggling the dosage of Meds so that i could communicate with people and not spend all my days sleeping. I think i should stop now ) I hope someone can relate to my story and if i can answer any questions about the surgery i had I'll be only too happy to oblige. For now, god bless you all and take care.
Derek
Diagnosed Crohn's 1995
Colo Rectal Surgery Sept 13th 2011
Meds Imuran 100mg
MST 10mg BD
Oxynorm 10mg PRN