Crohn's Disease Forum » Support Forum » New To It All

01-10-2012, 05:36 PM   #1
New Member
Join Date: Jan 2012
Location: Ft Lews, Washington
New To It All

Hello all,

I just joined the forum today. I'm so glad there is such support out there for Crohn's, because i really feel like i don't get any.

I was just recently diagnosed with crohn's back in october 2011. I was pregnant with my 3rd baby and i was in such excruciating pain that i thought i was in labor. Then all of a sudden i developed a fever and had to be hospitalized. That all happened in august of 2011. After a rigourous amount of CT scans, MRIs, Colonoscopy, and a ton of blood work, they finally diagnosed me as having crohn's in October. I was totally devastated. I had never heard of this disease before and was terrified because my doctor told me i had to be on medication for the rest of my life. I'm 25, i didn't ever think i'd have to take a medication so i wouldn't be in constant pain.

My doctor had me go on predisone, which i absolutely hated. So it didn't work at all with my pain. I was given percocet which didn't even touch the pain. So my doctor eventually put me on humira with mesalime (sp?) which seems to be working ok. I take my humira shot every 15 days and the other twice a day.

I had my son in September, by c section and just the build up from just having a baby and just being diagnosed, i just feel super depressed. My husband is upset with me because we don't have sex as often as we used to. I just have no interest, and i can't even talk myself into wanting to. I thought i had a sexual dysfunction, but i'm beginning to think it's because of the crohn's. Does anyone else have any similar cases? i'm at such a loss because i realy don't know what to do, or say to make my husband understand what i'm going through. Does anyone have any advice? I've tried explaining it to him, but it's like he forgets that the next time he wants to have sex and i have to constantly explain it to him.

Thanks for reading my story!

01-10-2012, 06:04 PM   #2
Senior Member
Rebecca85's Avatar
Join Date: Apr 2010
Location: Nottingham, UK
I have been there with the non-existant sex life (I think most of us here have) and with the depression. It is a common side effect of being a Crohnie. But it does get easier to deal with. You may want to consider seeking help (eg counsellor, meds), or you may find that as your Crohn's settles down you regain the old you.

Does your husband know much about Crohn's? It might be helpful if he researches it, or comes on the forum to get a little vetter understanding of what you're going through.

By the way, I'm 26 and was diagnosed pretty much out of the blue as you were, I do think it's a huge shock to the system to go from being perfectly healthy to relying on meds- the sticky on grief (at the top of the page) has some good info!
Crohn's in the terminal ileum, dxed Jun '10

125mg azathioprine
4g Pentasa
01-10-2012, 06:10 PM   #3
New Member
Join Date: Jan 2012
Location: Ft Lews, Washington
The way my husband reacts, he just doesn't seem to care about it. Like it's "no big deal." He makes me feel like i just need to get over it or something, but i don't think he really understands just how down i am about it. I try talking to him about it, but i just feel like he's not listening. Thanks for the advice

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