Crohn's Disease Forum » Treatment » Pred Taper Question

01-13-2012, 01:08 AM   #1
Join Date: Nov 2011
Location: Wheaton, Illinois

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Pred Taper Question

Hey everyone,
I am on Remicade and feel great. I am getting off Pred. My doctor told me to reduce 5mg every two weeks. I was on 40mg. Have been on Pred since mid-November. Anyways, I wanted off fast! Pred sucks! So I tapered 5 mg every 5 days and am down to 15mg and have been there for about 5 days. I am thinking of going down to 12.5mg tomorrow. I see my doc on Wednesday of next week. He probably won't like my self medicating. Anyways, after reading more, I can see that tapering to fast can be very dangerous, but I don't want to take pred for two more months.

How fast can you taper after a being on 40mg for a couple months?

Am I tapering myself way to fast?

Any advice would help. I feel fine right now. Thanks.
01-13-2012, 01:28 AM   #2
Join Date: Jan 2012
Location: Santa Rosa, California

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Adrenal insufficiency is the main concern with too aggressive of a taper. I too have had 2 doses of Remicade and feel very good. I am tapering down from 60 mg of pred, first by 10mg every 7 days then 5 mg every 5 days. I feel ok, a bit sluggish compared to being spun out on pred for so long. I am excited for the moon face and bags under my eyes to subside. Look up the symptoms of adrenal insufficiencyto see what to watch for and good luck!
01-13-2012, 02:03 AM   #3
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Join Date: May 2010
Location: New South Wales, Australia
I personally think that 10mg a week is too much but that is just my personal opinion. Matt tapered 5mg every 5 days and I think that, or every 7 days, is pretty stock standard. Some people start to taper more slowly once they hit 10mg, it just depends on whether symptoms start to sneak back in or if you have experienced problems in the past. Matt had no problem with the 5/5 taper until it was finished.

Dusty. xxx
Mum of 2 kids with Crohn's.
01-13-2012, 08:46 AM   #4
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Join Date: Feb 2011
Location: Balch Springs, Texas
my opinion is that going down to 12.5 from 15 is ok. You are right brianncc, you Dr. probably wont like you taking things into your own hands. I had a GI that wanted me to tapler 10 mgs a week! I tried and got very sick. In a lot of ways pred taper is a personal thing. Some people can handle a quick taper and some can't.
Crohns dx 1992
Bowel resection in 2000 and remission since then.
150mg Azathioprine maintenance dose
Ferrous Sulfate
Folic acid
Bentyl as needed
Lyrica x2 daily for pain
Norco as needed for pain
Ondansetron as needed for nausea
Miacalcin for the bones
That's a lot of stuff, but I feel good

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