Crohn's Disease Forum » Treatment » Remicade/Infliximab » Is my dosage to high for me?

02-09-2012, 05:20 PM   #1
Join Date: Jul 2011

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Is my dosage to high for me?

I have been on remicade for 5yrs and 3 months...everything was going good until about 6 months ago. I started having major flare ups and I wasn't able to eat and I got down to 105 lbs. I was at 125 lbs and my dosage is 600 mg. I lost the weight so my GI put me back on Imuran and steroids. Well my right shoulder and forearm started to hurt real bad. It was like a real sharp pain stabbing my shoulder and forearm, so I asked my nurse while I was receiving my infussion if I could get off the steroids. She had discussed it with my GI and he said to go ahead a wean off of them. So I did....hoping that the pain would go away, and it didn't. So I am wandering if my dosage is to high for me now, since I lost the weight. My nurse believes I should have it lowered and she discussed it with my GI and he told her no. He feels that the dosage is fine. Does anyone have any idea if the dosage is causing my pain?
Thank You
02-10-2012, 10:41 AM   #2
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SarahAnne's Avatar
Join Date: May 2011
Location: Panama City, Florida

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I'm not really sure myself, but a 20 lb weight loss seems like it would warrant some tweaking with the dosage. I am on 5mg/kg, so I am weighed each time I go in. The nurse puts it in computer and the pharmacy mixes it up then.

If it were me, I would ask to speak to the doctor myself and get a reason behind the no.

Good luck, let us know how it turns out.
Dx'd Crohn's April 1996
Bowel Resection w/appendectomy Oct 1996
Gallbladder removed Nov 2005
4 procedures in March/April 2010 to remove a kidney stone
Dx'd Dyshidrotic Eczema April 2011
Dx'd Pancreatitis July 2011
2nd bowel resection 10/12/11 - I have 130cm of small intestines left!
Dx'd Chronic gastritis April 2012

Currently taking:
Cholestyramine powder 1-2x daily
Remicade 5mg/kg every 8 wks
Vitamin D3, B12

Crohn's Disease Forum » Treatment » Remicade/Infliximab » Is my dosage to high for me?
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