02-11-2012, 10:04 AM   #1
Girun
Member
 
Girun's Avatar
 
Join Date: Feb 2012
Location: Daphne, Alabama
IBD stinks

I have been diagnosed with IBD since 1995. They initially said that I had UC b/c it was only sigmoid that seemed to be involved. Had a major flare I guess about 10 years a go now doctor was putting me on prednisone very time I would wean off would start bleeding again. I switched doctors he tried me on a different combo of drugs to no success, ended up in hospital entire transverse colon was almost occluded due to so much inflammation. At that point b/c of skip areas in colon I was fx. With crohns. Doctor started me on remocaide an pow, started feeling human again. Have had some flares since then but mild in comparrison with that. As all of you I am sure I have rounds of feeling sorry for myself. Decided to join thisnforum after on walk fro. Parking lot into work did not make it to toilet in time. Feeling very sorry for myself, needed to have some fellow sufferers for support And that is my story as I view it
02-11-2012, 10:19 AM   #2
chrisnsteph1022
Senior Member
 
chrisnsteph1022's Avatar
 
Join Date: Jan 2011
Location: Tennessee

My Support Groups:
Sorry you had an accident! I worry about that a lot as my commute is 45 minutes on back roads, in the morning. I've had too many close calls to count.

Are you still on Remicade? What do they do when you have the small flares on it? I just started it 3 weeks ago and I'm loving it!
__________________
Stephanie
dx 2003
Remission 2004-2010
Moderate/severe flare through entire colon 12/2010-10/2012
Lialda, omeprazole, Remicade, Methotrexate, Folic Acid, Questran
Been on Asacol, prednisone, Apriso, Imuran, Entocort and Cimzia
FB support group
02-11-2012, 10:28 AM   #3
Girun
Member
 
Girun's Avatar
 
Join Date: Feb 2012
Location: Daphne, Alabama
Yes have been on it every eight weeks for a long time now. When I have flares they just put me on Prednisone. I hate that b/c it makes me gain weight, irritable, and insomnia as well as everything else. But Remicaide seems to be working well for me. Flares are much more infrequent as they used to be. I am now having lower issues and he put me on canasa supp./rowassa enemas. we will see how it goes. So glad that you are in remission. Hope that remicaide does as well for you as it has for me
02-11-2012, 02:10 PM   #4
Crohn's 35
Inactive Account
 
Join Date: Oct 2009
Girun! Glad you found your way here, I have been on remicade too but short lived, I reacted terribly to it, by the 3rd infusion. Everyone is different on the biologics and other drugs so you have to find your diet and med or what ever helps you. We can help along the way, we are always here!
02-14-2012, 04:31 PM   #5
Girun
Member
 
Girun's Avatar
 
Join Date: Feb 2012
Location: Daphne, Alabama
Thank you all so much for your support so glad I found my way here
Reply

Thread Tools


All times are GMT -5. The time now is 09:36 PM.
Copyright 2006-2017 Crohnsforum.com