Reposted from Parents forum at one mother's suggestion.
Thanks in advance for any replies!
hello, sanity savers.
Well, as it is DAY 10 post initial Humira and not even a jot of change, not a speck, not an iota, I am again doubting that V's Crohn's is solely responsible for her generalized weakness (her only symptom).
To this end, I've made an appt with an immunologist/rheumatologist big dog, retired but still sees a few pts, at a University hosp for Mar 14.
I emailed her GI to say if no improvement after the next set of shots next Fri, I shall be hard pressed to keep her on Humira.
I just cannot find a single case that has weakness as the ONLY symptom.
Many on here have no GI sx, but no one seems to be bedridden with weakness as she is, and also GI sx free. All seem to be fatigued but functional; I have a neighbor who started Humira a few weeks before V; she has gut symptoms galore but still has a full time job at the post office and the energy to go to it.
Has ANYone ever heard of such a presentation, ZERO GI sx but weak as a kitten?
Thanks in advance for any replies!
hello, sanity savers.
Well, as it is DAY 10 post initial Humira and not even a jot of change, not a speck, not an iota, I am again doubting that V's Crohn's is solely responsible for her generalized weakness (her only symptom).
To this end, I've made an appt with an immunologist/rheumatologist big dog, retired but still sees a few pts, at a University hosp for Mar 14.
I emailed her GI to say if no improvement after the next set of shots next Fri, I shall be hard pressed to keep her on Humira.
I just cannot find a single case that has weakness as the ONLY symptom.
Many on here have no GI sx, but no one seems to be bedridden with weakness as she is, and also GI sx free. All seem to be fatigued but functional; I have a neighbor who started Humira a few weeks before V; she has gut symptoms galore but still has a full time job at the post office and the energy to go to it.
Has ANYone ever heard of such a presentation, ZERO GI sx but weak as a kitten?