Crohn's Disease Forum » Support Forum » Vent Away » How the frick do I get an appointment?!!

02-22-2012, 11:53 PM   #1
Join Date: Jul 2011
Location: Iowa
How the frick do I get an appointment?!!

So, I'm taking azathioprine, but I'm starting to convert it to the liver-damaging compound rather than actual medication, so my current GI doc (Dr. P) recommended that I start taking allapurinol with aza to avoid Remicade for as long as possible. The problem is, Dr. P doesn't prescibe that, so I have to find a new doctor. *le sigh*

I heard a bunch of really good reviews about one doctor (Dr. H) in Chicago, and I called and tried to set up an appointment. They kept setting up appointments for me with another doctor that I never asked about, who doesn't even specialize in Crohn's. I *may* have chewed out the woman who answered the phone about that after the third appointment set-up... hypothetically, or course

I *finally* got ahold of the right reception desk for Dr. H, and left a message. I went back to class for a few days, and they called when I was in lab, wrist deep in machinery. I called back only 15 fricking minutes later, and they had left the office for the day. Mildly frustrated, I left another message, asking about a specific date for an appointment.

They still haven't called back after a week!!! WTF?! I've been trying to be seen by them for at least a month now, sending medical records and picking up MRI cds. Do I have to go in and lay naked on the reception table to be noticed by these people? I can't call during business hours every day, my classes get in the way of that and I can't be at their beck-and-call all day. Should I drop any notion of EVER being seen by Dr. H? While I like Dr. P, I can only stay with him if I switch to infusion treatments.

(Also, what is the swearing policy on the boards? How acceptable are frick and WTF?)
02-23-2012, 12:46 AM   #2
Jennifer's Avatar
All of those words are acceptable. People are allowed to curse as long as its kept at a minimum unless you're simply about to explode, feel free to do so (I've seen and have said worse). We're here for support, not judgement just keep in mind that there are children on the forum.

Honestly I don't think Dr. H is all that great if they can't set up an appointment within a month and only tried calling you once. Better try someone else. There are a lot of GI docs out there and one may not exactly specialize in Crohn's only, they are better than nothing and may be able to prescribe the medication you need for now until you do find a GI that works for you. Shop around.
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 75mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel (endometriosis), Tylenol 3 (Osteoarthritis), Zantac 150mg 2/day (acid reflux), Klonopin 1mg (Panic Disorder), Imitrex 25mg (migraines), Zofran 8mg (nausea)
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 19 years and counting.
02-23-2012, 10:42 AM   #3
Senior Member
Join Date: Mar 2010
Location: Costa Rica
If it's that hard to get an appointment, imagine how difficult it would be to get test results, follow ups, etc. I'd go elsewhere.
** Remicade since Sept. 2011
02-23-2012, 11:56 AM   #4
Senior Member
littlemissh's Avatar
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
I agree, if its that hard to get an appointment, I would be looking elsewhere.
Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.

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