Crohn's Disease Forum » Surgery » Stoma Subforum » Too much weight gain!

03-09-2012, 09:58 PM   #1
Crohn'sGirl's Avatar
Join Date: Aug 2011
Location: Vero Beach, Florida
Too much weight gain!

Hey guys so I had my ileostomy surgery on Halloween and when I went in for the surgery I weighed 125 lbs. Now since the surgery I just went for Remicade treatments today and I weighed 163 I am not really thrilled with this much weight gain. Any suggestions on how to loose weight with the stoma? I know healthier items like a salad I was told I shouldnt eat so I'm kinda at a loss. Plus I know exercise is a very cautious activity because I don't want to end up with a hernia. Any ideas or suggestions would be appreciated!
Meds: Tried Lialda, Humira, 6 MP, and Prednisone
Currently taking 6 MP and Remicade every 8 weeks

Diagnosed in 2010 with Crohn's Disease

Had ilestomy 10/31/2011 and learning to take one day at a time.
03-10-2012, 06:03 AM   #2
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Misty-Eyed's Avatar
Join Date: Feb 2010
Location: United Kingdom

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I feel your pain. I think I've put on loads although no one says I look it. But I eat like a horse and want to cut down. I find that I can eat salads fine but it's not good for my output consistancy. One thing I would try for exercise is power walking. It's good for burning fat and it's good post op exercise. Exercise is still important to ostomates!! I am desperate to start running again but with my non healing bum problems it's a no go still

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
03-10-2012, 01:30 PM   #3
Terriernut's Avatar
Join Date: Dec 2010
Location: United Kingdom

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I'll second Michelle on the walking. But are you still on pred? Even if you arent and are just coming off it, it will stay in your system for awhile.

I'm the one with the hernia, and you dont want that! So, walk, walk, walk and fingers crossed it works. And just perhaps cut back on your portions. I find I can eat veggies if they are cooked enough. Give it a try? (slooowly)
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
03-17-2012, 12:52 PM   #4
ameslouise's Avatar
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
I think it's pretty common for weight gain after ileo. I gained 20 pounds after mine! Being healthy and having food stay in instead of gushing through and coming out in diahrea - it's all a good thing, but it definitely leads to weight gain!

I don't think there's any magic trick to losing weight when you have an ileo, any more than losing weight without one - eat less/better and move more. Age-old formula! But it can be tough if you are using carbs/bread/potatoes/rice, etc as a thickener for your output.

Hopefully once you get further out from your surgery, you will be able to handle more veg and salads, etc.

Good luck! - Amy

Crohn's Disease Forum » Surgery » Stoma Subforum » Too much weight gain!
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