Crohn's Disease Forum » Your Story » Crohns Veteran.


03-10-2012, 12:40 PM   #1
Bart4u
 
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Join Date: Mar 2012
Location: Los Angeles, California
Crohns Veteran.

Hi there I am new to this forum. I have had Crohns for 38 years now. I have had the disease since I was a teenager and I have had three major resections over the years since I have had Crohns. With so many operations I am on the border line with short bowel syndrome. I have tried most of the drugs for my disease and right now Humira seems to be helping me. It is not fun having this disease because it not only causes physical problems but it can cause emotional issues. I have found that Crohns effects my work and my ability to get health insurance. Lucky I am on the new Federal High Risk Program. If you have Crohns or UC you should check out that program. It is different in each state. I look forward to be reading the forums on this website.
03-10-2012, 08:53 PM   #2
David
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Join Date: Feb 2006
Location: Naples, Florida
Hi Bart and welcome! I'm really glad you joined. 38 years? That's incredible.

Since you've had so much of your intestines removed, are you on any special vitamin/mineral/nutrient supplementations? Do you have your various levels monitored since you no doubt have some absorption issues?

We're here for you anytime and I look forward to seeing you share some of your wisdom for the newbies as well.

Oh, one more thing. Have you seen that they have bowel transplants now?

All my best to you!
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03-11-2012, 07:37 AM   #3
Angrybird
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Join Date: Nov 2011
Location: Cambridge, United Kingdom

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Hello and welcome to the forum Bart. I am so pleased you have joinecd us, with that about of experience with the disease I am sure there will be helpful info and advice you can impart on us here.

I will keep fingers crossed that the Humira continues to help and hope to see you around the forum
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
03-11-2012, 08:35 AM   #4
Astra
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Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

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Hiya Bart
and welcome

You really are a vet! We'll be picking your brains!
Glad you found us, enjoy the forum! Good luck with the Humira too
lotsa luv
Joan xxx
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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