Crohn's Disease Forum » Surgery » Stoma Subforum » Sorry I've been MIA!

03-17-2012, 12:58 PM   #1
ameslouise's Avatar
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
Sorry I've been MIA!

Hi Everyone -

I am sorry I have been away for so long! Lots going on in my life - all good things - and just busy in general!

March 15 was Bilbo's birthday - Happy Birthday Bilbo! We have been living happily together for 1 year and life is better than ever! I am thankful everyday for my stoma. Knock wood, I haven't had a leak in 11 months, and no issues whatsoever, other than fighting the occasional dehydration and iron/vit B deficiencies.

Currently trying to lose the 20 pounds I have packed on since last March! Busy running Harrison around to different activities, doing some volunteer work at our local performing arts center, supervising renovation/design of our new office building, moving Levi's granmda to assisted living, helping my sis cope with a divorce and breast cancer, less time on my laptop and more time on my new iphone - all things that have kept me away from the forum.

But I think of you all often and hope you are doing well. I will pop in from time to time to say hello and see how you are all doing!

Lotsa love and hugs - xo xo xo - Ames
03-17-2012, 02:42 PM   #2
Terriernut's Avatar
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
Hiya Gorgeous!!! Miss your wit and wisdom me luv!!! As long as you are having fun in between all the other bits!
DX Crohns Feb 2011, symtoms 1997, 2009 and then WHAM! Emergency surgery for perforated sigmoid, fistula through fallopian tube, septic and near dead: Colostomy-Stan was born 22/12/10. Another parastomal hernia, his name is Ollie and he is MONSTER size!
4gm Pentasa
6MP 50mg
03-17-2012, 03:37 PM   #3
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
Hey, good to see you Amy, and all the good stuff going on in your life!
Stay well and cya soon!


Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

03-17-2012, 03:50 PM   #4
Senior Member
littlemissh's Avatar
Join Date: Dec 2010
Location: United Kingdom

My Support Groups:
So glad you are doing so well and enjoying life. Good to hear a success story!
Long may it last!
Diagnosed Crohns small bowel 2010,Gastroduodenal crohn's Jan 2012. Gastroparesis june 2014.
Duodenal perforation/peritonitis nov 2011. Portacath placed Nov 2013. Gastric pacemaker 2015.
Perforated jejenum/peritonitis oct 2015, PEJ for enteral feeding nov 2015

On Humira every 7 days, intermittent iv iron, regular blood transfusions :faint:
On TPN since March 2016.
03-17-2012, 05:42 PM   #5
Forum Monitor
Misty-Eyed's Avatar
Join Date: Feb 2010
Location: United Kingdom

My Support Groups:
Good to hear from you! Hope your sister is ok though!!

'You can't change the past but you can ruin the present by worrying about the future.'

Diagnosed with Crohn's colitis aged 9, 1992.

Panproctocolectomy and terminal end ileostomy October 2011.
03-18-2012, 04:47 AM   #6
Super Moderator
DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
What a fabulous update Amy! I am so happy for you that things are going so well! May it keep on keeping on...

I am so sorry to hear about your sister though, that's gotta be tough.

Onwards and Upwards!
Dusty. xxxxxxxx
Mum of 2 kids with Crohn's.
03-18-2012, 05:31 PM   #7
Silvermoon's Avatar
Join Date: May 2010
Location: Alberta
Ditto on the sister thing, but yes, so happy to hear things are going so well for you!

Hmmm divorce and breast cancer - it is probably only me that has a warped take on things, but it just occured to me.... maybe 2012 is going to be a good year for your sister for getting rid of unwanted annoyances in her life???? (ie both husbands and boobs CAN be annoying and even down-right miserable at times....)

I am sorry - maybe that is just a bad joke... - either way i really do wish yyou and all of your family the very best.....
My Story
03-20-2012, 05:38 AM   #8
Senior Member
shazz's Avatar
Join Date: Nov 2011
Location: Plymouth, United Kingdom
Hi Amy.
So glad to hear all things going well with you. Happy birthday to Bilbo!
Sorry to hear about your sister and fingers crossed for a positive outcome for her.
DX: September 2011 UC now possible Crohns Feb 2012
Have tried: Pentasa(all forms),Prednisolone,Aza, 6MP, Infliximab,colifoam,metronizadole
Allergic/sensitive to: Penicillin, medical adhesives, tramadol
Am on: Citalopram,warfarin, paracetamol
Ozzie was born on 2/2/12
23/2/12 p.e in both lungs.
Now the gallbladder decides to say hello!!
03-20-2012, 08:34 AM   #9
LOSTnut's Avatar
Join Date: Mar 2010
11 months without a leak (red with envy, as I am sitting here, getting ready to change ...out of order)

Otherwise, really glad to hear from you even though not all the news is good within your life. Wishing the best outcome for your sister and may the good days for you and Bilbo continue.

Hugs ..

Diagnosed: April 2005

Back on Asacol

Dec 2010: colostomy/resection - failed
Jan 2011: Ileostomy
Resection planned for: sometime
03-21-2012, 06:10 PM   #10
ameslouise's Avatar
Join Date: Feb 2010
Location: Pottstown, Pennsylvania
Hi all - Thanks for the words of support for my sis. She has a GREAT prognosis - tamoxofin (sp?) only and no chemo or radiation needed! She's getting new boobs, a cup size bigger, and is getting rid of her albatross of a husband. So Silver, yes, you are right, it will be a great year for her!!

Heike - once I switched to convex bags, voile! They are great. I can go six days until I need to change it!!!

Happy Spring to everyone - it's gorgeous here and Spring has arrived early!!

xo xo - Ames
03-22-2012, 07:47 AM   #11
LOSTnut's Avatar
Join Date: Mar 2010
Woohoo for your sister and all involved! I just lost a friend to breast cancer so it is just phantastic that your sister is doing good and only needs minimal treatment.

Ha, I use convex wafers too ... still every once in a while I have a leak. Not really sure what causes it .. then again, could be a thousand reasons.
So, here's to you and whatever prevents leaks. nothing worse than public humiliation with sh**** running down you leg ...

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