Crohn's Disease Forum » Your Story » New & thankful

03-19-2012, 08:01 PM   #1
heidit68's Avatar
Join Date: Mar 2012
Location: Utah
New & thankful

Hello there, I was diagnosed last year with Crohn's after firing the first gi dr when he said I think you have Crohn's but you look good. What does that mean exactly? That my make up looks great? Lol. I have found a wonderful new dr/digestive health center & the Crohn's is confirmed. I am thankful its not severe yet & have been spending hours each day researching treatments, diet, general information, etc. on what I can do myself / with my dr/ medication to get my crohns under controlI must say this site has helped me in every way. I am on my second round of entocort as another flare has struck while trying Pentasa and it failing . Kind of scared of the Imuran or remicade the dr wants me to try next but, understand why it's important to get into remission. Thank you to everyone for all of the posts in every section of this site. It helps to know I am not alone fighting this disease. I look forward to getting to know everyone!
03-19-2012, 08:28 PM   #2
New Member
Join Date: Feb 2012
Location: Little Rock, Arkansas
Welcome Heidit68! I recently joined the forum myself after a year visiting the pages. The information from people going thru the same things we do daily is very helpful and encouraging. I recently started the Remicade infusions and was fearful of that drug as well. So far I can tell you that it has helped me to taper the prednisone and I no longer have blood in stools daily. It has been great for me. Hope you are doing much better soon..
DX: October, 2010
Current Meds: Lialda, prednisone 20 mg tapering from 40 mg, Remicade (as of 2/27/2012), vitamin D 50,000 IU weekly, probiotics, Claritin D, Meloxicam, Toprol, Imitrex and pain med for migraines (as needed)
03-20-2012, 08:15 AM   #3
Angrybird's Avatar
Join Date: Nov 2011
Location: Cambridge, United Kingdom

My Support Groups:
Hello and to the forum, I am glad that you are already finding the info here helpful, it is good that you are getting yourself educated on this disease. Can I assume based on your comments that you have checked out the sub forums for each of the above mentioned meds? If not do check these out so you can then weigh up the pro's and con's of each before making a final decision.

Wishing you well again soon and hope to see you around the forum


NB Pls keep us updated on how you are getting on.

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
03-20-2012, 08:01 PM   #4
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Hi Heidi and welcome, I'm really glad you found your way to our little community. I'm pleased to hear it has been beneficial for you already! We're here for you anytime and look forward to getting to know you better as well

I wish you nothing but the best going forward.
It's good to be back
03-20-2012, 09:25 PM   #5
heidit68's Avatar
Join Date: Mar 2012
Location: Utah
Thank you all for your support and encouragement. I had the blood tests today and will start the Imuran soon. I hope each of you are doing well!

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