- Location
- Boston, MA
Hi everyone,
Thought I would share my story in case there is anyone out there with a similar one.
-Diagnosed Lactose Intolerant back in 2004
-Occasional incidents of pain that doubled me over since then, mostly from eating too much dairy or fried food
-Had my son in 2008
-Had my daughter in 2010
-Soon after having her, began to have intermittent dull upper left sided abdominal pain
-Ignored pain for about 6 months, it began to worsen to a stabbing pain
-OB sent me for CAT scan thinking it was an adhesion from my C section, it wasn't
-Primary Care finally referred to a GI in Fall of 2011 when I lost 20 pounds in about two months for no reason
-He ordered endoscopy first, showed reflux but nothing else, Prilosec prescribed
-Blood levels came back normal
-He ordered colonoscopy, showed polyp (benign) and ulcers on terminal illeum
-This still did not explain upper left pain which by now was constant, stabbing all the time
-Also felt like bugs crawling downward from time to time or gravel rolling in my intestines
-He then ordered capsule endoscopy to see if ulcers also existed in my upper intestine (where pain was worst)
-Capsule showed nothing there Still do not have answer for this stabbing pain but GI said maybe 'referred pain' from terminal illeum
-Ulcers were still present and flared 5 weeks after colonscopy when capsule went through so he gave me Crohn's Dx, Mild
-Other symptoms: anal skin tag, achy joints, trouble with eyes (red, itchy, flashing light in left eye), do not have 'bathroom issues', just urgency to go 4-5X a day
-I am now starting Pentasa 3x a day (2 pills each dose)
-Also taking multivitamin, B12 and starting a calcium supplement too
-Going to meet with Primary Care next week to see about a referral for a Dietician since this altered diet is completely overwhelming for me
-So glad I found this forum, you are all so supportive and helpful thus far! Thank you!!
Thought I would share my story in case there is anyone out there with a similar one.
-Diagnosed Lactose Intolerant back in 2004
-Occasional incidents of pain that doubled me over since then, mostly from eating too much dairy or fried food
-Had my son in 2008
-Had my daughter in 2010
-Soon after having her, began to have intermittent dull upper left sided abdominal pain
-Ignored pain for about 6 months, it began to worsen to a stabbing pain
-OB sent me for CAT scan thinking it was an adhesion from my C section, it wasn't
-Primary Care finally referred to a GI in Fall of 2011 when I lost 20 pounds in about two months for no reason
-He ordered endoscopy first, showed reflux but nothing else, Prilosec prescribed
-Blood levels came back normal
-He ordered colonoscopy, showed polyp (benign) and ulcers on terminal illeum
-This still did not explain upper left pain which by now was constant, stabbing all the time
-Also felt like bugs crawling downward from time to time or gravel rolling in my intestines
-He then ordered capsule endoscopy to see if ulcers also existed in my upper intestine (where pain was worst)
-Capsule showed nothing there Still do not have answer for this stabbing pain but GI said maybe 'referred pain' from terminal illeum
-Ulcers were still present and flared 5 weeks after colonscopy when capsule went through so he gave me Crohn's Dx, Mild
-Other symptoms: anal skin tag, achy joints, trouble with eyes (red, itchy, flashing light in left eye), do not have 'bathroom issues', just urgency to go 4-5X a day
-I am now starting Pentasa 3x a day (2 pills each dose)
-Also taking multivitamin, B12 and starting a calcium supplement too
-Going to meet with Primary Care next week to see about a referral for a Dietician since this altered diet is completely overwhelming for me
-So glad I found this forum, you are all so supportive and helpful thus far! Thank you!!