03-27-2012, 06:39 AM   #1
Kelsey
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Join Date: Mar 2012
Location: Christchurch, New Zealand
Newbie :)

Hey everyone

My story starts when I was about 11/12 years old and I began having severe unexplained abdominal pain I was first sent to a gynecologist as doctors automatically assumed it was period related so 5 years on and two operations later the gynocologist came to the conclusion that it had nothing to do with female problems and said it was in my head which after 4 years of people telling you that you pretty much start to believe them. I was finally sent to a local gastroenterologist and within 6 months he had diagnosed me with ulcers in my small intestine after a pill camera. It would have been faster then 6 months but thanks to being lucky enough to live in the city that likes to shake things were a bit slow moving.
I am very grateful to finally have an answer so that when I go to the doctors I can say I have crohns instead of the whole I have a sore tummy routine.Cookie

But the one thing I am still struggling with is people not understanding the severity of the disease as on the outside I look like any other teenager and so they automatically assume im not as sick as i make out to be (maybe they should have a look at my cupboard jam packed full of different medications and painkillers, then see what they have to say).

So im very grateful for this forum as I feel I'm not alone and can relate too many people's posts and have also learnt a lot about crohns they I've never knew before.
03-27-2012, 07:06 AM   #2
Angrybird
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Join Date: Nov 2011
Location: Cambridge, United Kingdom

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Hello Kelsey and to the forum. Unfortunately there are some very ignorant people out there who totally do not get this disease and think it is similar to the issue they had Saturday night with a dodgy curry It is great that you have joined us as we totally get it here

What meds are you on at the moment? How are things for you symptoms wise?

Hope you are feeling well.

AB
xx
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
03-27-2012, 04:43 PM   #3
carrollco
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Join Date: Dec 2010
Location: Grass Valley, California

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Hello, Kelsey.

You are so young to have to fight this. My prayers are with you.

I hope you have a good doctor who will explain everything to you. You will find a lot of information on this site, with very understanding people, willing you help you along the way. I know what it's like to look healthy, and not feel good. Really, it doesn't matter what other people think. You just learn how to listen to your symptoms, so you know how to take care of yourself each day.
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Louann
First diagnosed 12/4/10
Humira 4/7/11 and lovin' it


Previous Meds:

Methotrexate--had kidney/liver damage
Lialda--allergic to aspirin--but didn't know until my Crohn's got much worse.
Prednisone--only when I have to!
03-27-2012, 09:49 PM   #4
Kelsey
New Member
 
Join Date: Mar 2012
Location: Christchurch, New Zealand
Thanks for the support

I'm currently taking 6mp and allopurinol and am what I would call in a stable way where I'm feeling pretty good most of the time with bouts here and there just happy to have found a medication that finally agrees with me
03-27-2012, 11:16 PM   #5
linsey
New Member
 
Join Date: Mar 2012
Location: Dendermonde, Belgium
Welkom I hope you will feel safe here.
One day your friends will understand the pain and disconfort you are in.
for now I wish you the best of luck and a lott of strengt

Linsey
03-29-2012, 12:48 PM   #6
David
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Location: Naples, Florida
Hi Kelsey and welcome to the forum. I'm so glad you joined! You are definitely not alone
I'm currently taking 6mp and allopurinol and am what I would call in a stable way where I'm feeling pretty good most of the time with bouts here and there just happy to have found a medication that finally agrees with me
What dose of 6mp are you on? Usually with allopurinol they reduce the dose otherwise problems can occur. Are they monitoring your blood levels REGULARLY?

How are you feeling these days?

All my best to you!
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It's good to be back
03-30-2012, 03:55 AM   #7
Kelsey
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Join Date: Mar 2012
Location: Christchurch, New Zealand
I'm taking 50mg of the 6mp and get bloods taken weekly and allopurinol was added as my liver function was getting to high.
6mp is working for me so far so hopefully keeps this way as not in the mood to try another medication already tried pentasa and aza and they didnt work and I'm not a fan of prednisone so try to stay well clear of that.
03-30-2012, 09:47 AM   #8
David
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Location: Naples, Florida
Excellent Sounds like your doctors are on top of things. That's wonderful.
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