Crohn's Disease Forum » Your Story » Newbie to crohns life


03-29-2012, 04:34 PM   #1
rthiele
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Location: Kenosha, Wisconsin
newbie to crohns life

I am having a hard time with all of this I have crohns for sometime, they didnt relize it until I was 38, I have had other health issue such as endometrtisis, ( finally had hysterectomy at 37,and arthrtsis. I am lactose intolance since I was a kid, I am also allergy to soy,peanuts, and dustmice, I also have GERD, so my diet is blah. Because when I eat i feel bloated and bathroom issues are the worst, I fight with C diff on and off for some time now. I have had a resection of my large colon2 yrs ago. I have aches and pains, with not being able to have NSID due to crohns, my GI dr has me on Tramadol for the pains, it makes me sick as a dog, and sleepy so it works but its doesnt I want to live a normal life.
Am currently on Azathioprine, Tradamol, vitamin for my calcium C for lactose and Vitamin D for lack of due to crohns, 2 different Glyol, Singuilar, Prilosec. This is my second and third GI doctor, and I still am have issues. My family doctor is helping the best he knows how, he really listens, the GI seem to care but dont really seem to listen Is it because I am so restricted? HELP
03-29-2012, 07:41 PM   #2
David
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Wow, I'm so sorry you're suffering so much. You poor thing

But welcome to the forum, I'm really glad you decided to join.

Have you heard of elemental nutrition? Based upon everything you've said and since your diet is already, "blah" I'd suggest you look into it. We have a whole forum dedicated to it here. It is actually shown to have remission rates as high as prednisone without all the side effects.

I wish you all the best! We're here for you anytime you need us
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03-30-2012, 12:02 PM   #3
Angrybird
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Hello and welcome to the forum. That is a lot to be putting up with! I agree with David about looking into elemental nutrition and checking out the forum about it, hopefully this may do the trick for you.

I am glad you have decided to join us as whilst there is a lot of really helpful info here there is also a lot of support from a great bunch of people which I think helps when going through tough times.

Wishing you better soon.

AB
xx
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Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
03-30-2012, 02:40 PM   #4
carrollco
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Hi! Welcome to the forum.

I had to go through two docs, before I found the right one. It takes time to figure it all out. After I'd done the run through on several medications, my doc put me on Humira. It has been a god-send. I'm not 100 percent perfect, still have some pain, bloating, etc., but am much better than I was.

Keep searching for the right doc. It's worth it. I can't eat nuts, or fiber, and dairy makes me sicker than a dog, even on the Humira. But I can eat french-fries! So, I get where you are coming from. Having a doc who listens and cares, is worth everything.
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Louann
First diagnosed 12/4/10
Humira 4/7/11 and lovin' it


Previous Meds:

Methotrexate--had kidney/liver damage
Lialda--allergic to aspirin--but didn't know until my Crohn's got much worse.
Prednisone--only when I have to!
03-30-2012, 03:26 PM   #5
CLynn
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Location: Missouri
Welcome hon, sorry to hear you are having such a rough time. Try another GI, you need one you feel comfortable with and like, if they don't respond the way you need them too, then off to the next as far as I am concerned. This is your life, and your illness and the docs work for YOU not the other way around.
And just to tell you, I had a great friend that was from Kenosha originally.
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Cheryl
Diagnosed:1988
Previous meds: Sulfadiazine, Flagyl, Prednisone, Imuran, Pentasa, Asacol
Surgeries: re-section 2004
Currently taking: B-12 injections every 2 weeks, multi vitamin/mineral, fish oil (1000 mg), D3 (5000 mg)

Also lucky enough to have psoriasis as well.
03-30-2012, 06:48 PM   #6
rthiele
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Location: Kenosha, Wisconsin
Wow, I'm so sorry you're suffering so much. You poor thing

But welcome to the forum, I'm really glad you decided to join.

Have you heard of elemental nutrition? Based upon everything you've said and since your diet is already, "blah" I'd suggest you look into it. We have a whole forum dedicated to it here. It is actually shown to have remission rates as high as prednisone without all the side effects.

I wish you all the best! We're here for you anytime you need us
Thanks David I will look into it I canr drinks most of those due to have dairy in them
03-30-2012, 06:50 PM   #7
rthiele
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Thanks everyone, it just sucks..
@ Clynn oh may I ask who? I was born and raised in Kenosha all my life.
P S What does everyone do for insurance I am unable to work and no insurance
04-02-2012, 09:34 AM   #8
CLynn
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Location: Missouri
Her name is Janet Pierce. I know she had two older brothers as well. She and her parents moved to Missouri sometime around 1985 or 86.
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