Crohn's Disease Forum » Your Story » I have had crohns for nearly 10 years


04-04-2012, 12:26 PM   #1
Carole Ann
New Member
 
Join Date: Apr 2012
I have had crohns for nearly 10 years

I have just had surgery for a perianal abcess just one of the nasty symptoms of this disease. Over the last 10 years my life has been one of flare ups and high dose prednisolone steroid..none of which have stopped the disease from spreading now completely in my colon. Am starting infliximab tomorrow after a short dose of mercaptopurine which i was allergic to. Really scared as i have read some pretty horrible things abount this drug but i feel i have no option now as so want to feel well again. This disease has taken over my life and i try to feel positive but life is hard when you feel so ill most of the time, the other thing is that most people dont understand how debilitating this disease is. Would be nice to be in contact with others who are going through a rough time and also some encouraging stories of living life with crohns.
04-04-2012, 01:05 PM   #2
IAmTheWalrus
Senior Member
 
IAmTheWalrus's Avatar
 
Join Date: Apr 2011

My Support Groups:
Welcome, look at the link in my signature if you want know more about biologics.

=D
__________________
28 y/o male from Dublin, Ireland, Dx with Crohn's Colitis in January 09.

Current Meds: Remicade, Imuran.

Risk/Benefits of treating Crohn's. Link below

http://www.ccfa.org/assets/pdfs/risk...transcript.pdf
04-04-2012, 01:31 PM   #3
Angrybird
Moderator
 
Angrybird's Avatar
 
Join Date: Nov 2011
Location: Cambridge, United Kingdom

My Support Groups:
Hello and welcome to the forum. Sorry to hear that things have not been going well. It is worth having a look at our Remicade sub forum to get more info about it:http://www.crohnsforum.com/forumdisplay.php?f=58 for some is has definetly done the trick and gotten them feeling better again so fingers crossed that it will work for you too!

I am glad you have joined us hun, there is a lot of helpful info here but also a lot of support from a great bunch of people.

AB
xx
__________________
Angrybird

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
04-04-2012, 03:33 PM   #4
David
Co-Founder
 
David's Avatar
 
Join Date: Feb 2006
Location: Naples, Florida
Hi Carol Ann and welcome I'm so sorry to hear that you've been having a tough time of it You poor thing.

I pray that the Infliximab is the answer for you. Please keep us updated as to how you're doing and let us know if there's anything we can do for you.

*hugs*
__________________
It's good to be back
04-04-2012, 07:04 PM   #5
ksiwek81
New Member
 
Join Date: Sep 2011
Location: Memphis, Tn.
Welcome to the forum! This website has helped me tremendously in dealing with this disease. Mine too has been very aggressive. I really would not worry so much about the side effects of Inflixibimab. For one reason, all drugs have side effects. For two, you will forget about the side effects of Infliximab when it starts to alleviate your symptoms. I was on it for 3 years, but had to get off of it due to abscesses from infected mesh. It really did the trick for a while, and there were times that I even forgot that I had Crohn's. I wish you well, and hope Infliximab puts this nightmare of a disease in check for you.
04-06-2012, 01:12 PM   #6
Carole Ann
New Member
 
Join Date: Apr 2012
Hi guys thank you for your replies and good wishes. Finally had my first infusion actually was not as bad as I thought it would be. Nice cosy recliner chairs, magazines, TV and a great nurse who did half hour tea and coffee run with biscuits! Was feeling very tired yesterday and this morning but am feeling more positive this evening. Next infusion in 2 weeks time hope will feel much better very soon. Good wishes to you all Carole Ann
04-06-2012, 03:31 PM   #7
David
Co-Founder
 
David's Avatar
 
Join Date: Feb 2006
Location: Naples, Florida
Hi Carole Ann, that's great! I'm really pleased that it went well Fingers are still crossed!
04-06-2012, 03:40 PM   #8
Angrybird
Moderator
 
Angrybird's Avatar
 
Join Date: Nov 2011
Location: Cambridge, United Kingdom

My Support Groups:
Glad to hear it went well Carole Ann, also keeping fingers crossed that this continues for you!
Reply

Crohn's Disease Forum » Your Story » I have had crohns for nearly 10 years
Thread Tools


All times are GMT -5. The time now is 02:56 AM.
Copyright 2006-2017 Crohnsforum.com