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Hi from Wales

Hi everyone

I am a 44 year old welsh male

Well heres my shortened story...for 6 or seven years i have been suffering from symptoms that include,dihorea,severe pain(not always together)jelly like slime in stool(past 6 months blood and slime),bloating,nausea occasinal rash,joint pain (also sometimes feel like am going to faint like a sugar crash and have to eat and sit down) and fatigue like god knows what.when i am having a bad time usualy it makes me want to pee a very lot too.

I have seen the same gp for 6 years and was told ibs,ibs,ibs gave me the odd blood test, over the years my symptoms have worsened my social life and work have been a total test.Last year i had enough and thought right gp your going to have to take me seriously because everyone i talked to and everywhere i looked my pains and symptoms just seemed like i must be the worse case of ibs in history.Over the years tried all the ibs treatments and exclusion diets)
.I told the gp help me or i will do something really stupid(i had no intention just hoped it would work) Well he listened and said i hadnt told him how bad it was ect ect (i had told him so many times) anyway a several month wait for a consultants appointment was what he offered.I then asked how long private and two weeks was the answer(i opted for private just for the consultation)

anyway to shorten the story colonoscopy,and edoscopy down throat ,bloods and nothing found.Specialist diagnosis ibs he also mentioned that 5% of cases of crohns dont show up on bloods or get diagnosed by colonoscopy.

I am with a new doctors because i have moved and am getting a lot more help,as i have been bleeding regular i will be going for another colonoscopy just to check out anything scary i supose.

I know it sounds really daft but i obviously dont wanna be ill but at least if they find what it is i can try and fight it.

After reading through the forums both symptoms,diagnosis and peoples stories i feel sure that i am in the right place and that eventualy i will get somwhere with whatever it is i have.:D (i recently actualy met someone who had similair experience with symptoms and tests and was diagnosed when they actualy did colonoscopy number 4 during a flare up)

Anyway any advice or comments welcome
 
Hi Welsh...I am kinda what you call the lucky one cause at my very first colonoscopy I WAS diagnosed with CD. I know there are many here that are still waiting for a diagnosis and will be along shortly to answer you. I also was a strange case because I never bleed not even during a flare and all my blood work always came back normal. It was only the biopsy that confirmed the CD. Hope you get some answers soon...and I agree it would be nice to get a correct diagnosis.
 
Hi TWO!

It's so frustrating to not know eh! It's the not knowing that is hard to cope with. I wish you the best of luck!

welcome to the forum! :)
 

Angrybird

Moderator
Location
Hertfordshire
Hello and welcome to the forum, you have definetly come to the right place to get the info and support you need :) As you have already seen it is unfortunate that despite having all these symptoms people still cannot get passed the IBS 'diagnosis'. Do you know if biopsies were taken at your last scope? I do sometimes wonder that if the bowel looks ok whether the doc then bothers to do these, it can be that only the biospy can confirm what is wrong so they really need to be done. Also a colonoscopy can only show what is going on up to a certain point, not much of the small bowel can be looked at so if the next scope is still not showing much perhaps ask about having a pill cam so things can be looked at higher up.

I will keep fingers crossed that you can get a diagnosis soon and can be on the way to getting on a working treatment plan.

AB
xx
 
Hi
I know when they looked down the throat they did, as they where looking for celiac ect but as for the other i will pose that question because wrongly i suspose, i assumed that they did, and as i got the ibs diagnosis that it was clear.I wondered till i read up on here about how far down and up they go and can inbetween be the offending area for whatever i may have. Well you live and learn and get to understand so much more off the people who have gone through all of this.I should be going in for a colonoscopy v soon as doctor has refered me because of the bleeding i will ask the surgeon lots more questions.I seem to remeber the last one saying that he still wanted to do scans barium etc after the last colonoscopy then when it came to it said i didnt need them.
Thanks for the welcomes and thankyou for the reply
 

David

Co-Founder
Location
Naples, Florida
Hi there and welcome to the forum :)

First off, you don't have IBS. IBS doesn't cause the symptoms you mention. If you have a doctor that says IBS, find a new one.

Second, have you had a CT Scan, capsule endoscopy (pill cam) or small bowel follow through? While colonoscopy is a great way to diagnose many cases of IBD it is sometimes hiding higher up the intestines than it can reach.

I agree you're likely in the right spot. We're here for you anytime.
 
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