Crohn's Disease Forum » Support Forum » The discomfort is so trying

04-12-2012, 12:41 PM   #1
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Adam1971's Avatar
Join Date: Mar 2012
Location: Vermont
the discomfort is so trying

Hi all. I just need a moment to share how hard today has been. I am still dealing with a bottle neck in my TI, and I can't really eat without pain, discomfort, gas, and very painful diarrhea. Its a little heightened because I am at a 2 day staff retreat for the agency I work at- lots of sitting, abaundant meals I can't eat, too many trips to the bathroom than I can count, and my backside is flaming . I am waiting for humira to kick in and entecort isn't really helping anymore.

I just needed to vent a bit and ask for support. I almost started crying in the lunch line.

Thanks and lets hope for better digestion!

dx Crohn's in TI March 2012

Surgery on Dec. 11th, 2012-Ileocolic resection

Remission since surgery- a true blessing
04-12-2012, 12:49 PM   #2
Senior Member
CLynn's Avatar
Join Date: Feb 2012
Location: Missouri
Oh, Adam, so sorry to hear how you've been feeling. I will have you in my prayers, sending good thoughts and hugs your way.
Previous meds: Sulfadiazine, Flagyl, Prednisone, Imuran, Pentasa, Asacol
Surgeries: re-section 2004
Currently taking: B-12 injections every 2 weeks, multi vitamin/mineral, fish oil (1000 mg), D3 (5000 mg)

Also lucky enough to have psoriasis as well.
04-12-2012, 01:04 PM   #3
Senior Member
shazz's Avatar
Join Date: Nov 2011
Location: Plymouth, United Kingdom
Oh hun.
So sorry you are up suffering like that.
Hope the humira kicks in soon and you can get some much needed and deserved relief.

DX: September 2011 UC now possible Crohns Feb 2012
Have tried: Pentasa(all forms),Prednisolone,Aza, 6MP, Infliximab,colifoam,metronizadole
Allergic/sensitive to: Penicillin, medical adhesives, tramadol
Am on: Citalopram,warfarin, paracetamol
Ozzie was born on 2/2/12
23/2/12 p.e in both lungs.
Now the gallbladder decides to say hello!!
04-12-2012, 01:14 PM   #4
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
Adam, hopefully the Humira will kick in soon, xxx


Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

04-12-2012, 02:39 PM   #5
Senior Member
LindaS's Avatar
Join Date: Jul 2011
Location: Minnesota

My Support Groups:
Adam, I'm so sorry you are in so much pain. I hope the Humira kicks in soon for you.
Crohn's Sucks!
04-12-2012, 02:40 PM   #6
Senior Member
Rebecca85's Avatar
Join Date: Apr 2010
Location: Nottingham, UK
Could you try a liquid diet (enteral nutrition) until the meds kick in? Maybe a liquid diet would pass through the bottleneck without giving you pain.
Crohn's in the terminal ileum, dxed Jun '10

125mg azathioprine
4g Pentasa
04-13-2012, 08:02 PM   #7
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Adam1971's Avatar
Join Date: Mar 2012
Location: Vermont
Thanks for all the well wishes and advice. It definitely helped to come to the forum with what I was feeling. I am doing much better today.

04-13-2012, 09:01 PM   #8
Join Date: Mar 2011
Location: US
Glad you're doing better, Adam!

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