I posted over a month ago about my 23 year old son who is trying the Specific Carbohydrate Diet (has had Crohns for 22 years). We soon realized from the replies that we were doing several things wrong, introducing some things too soon. Once we did the intro and got on track he has been eating meat patties, turkey, chicken and occasionally pork. Also pureed carrots, butternut squash, zucchini, yellow squash, broth, and applesauce and grape juice jello. He has been very strict with no illegals, but the problem is he is just getting worse. He has gone from 5-6 bouts of diarrhea to 8-10 a day. He has way more blood and now has to get up in the night to use the bathroom. He is trying to get enough calories by eating 5-6 meals a day, but sometimes gets bad breath (ketosis I think) from all the meat. He is hungary most of the time and is down about 12 lbs and can't afford to lose any more. He has become listless and lacks energy now - he had been doing much better before we started the diet.
I wondered if anyone else had this issue? We took out the fruit and jello for a few weeks thinking maybe that was the problem, but no change. He wants to continue on but is definitely going downhill. He is presently not on any medication because he can't tolerate most of them (allergic maybe). We're getting some blood tests run this week to check for deficiencies. He graduates from college in June and has a job already and I don't want to jeopardize that as he will get health insurance (He is still on ours presently)
I would be interested if anyone with more experience with Scd has any suggestions or to hear from anyone else who had a decline like this while on the diet? Did you turn it around? I feel we are running out of time and worry about making him worse especially when we don't have alot of other treatment options.
I wondered if anyone else had this issue? We took out the fruit and jello for a few weeks thinking maybe that was the problem, but no change. He wants to continue on but is definitely going downhill. He is presently not on any medication because he can't tolerate most of them (allergic maybe). We're getting some blood tests run this week to check for deficiencies. He graduates from college in June and has a job already and I don't want to jeopardize that as he will get health insurance (He is still on ours presently)
I would be interested if anyone with more experience with Scd has any suggestions or to hear from anyone else who had a decline like this while on the diet? Did you turn it around? I feel we are running out of time and worry about making him worse especially when we don't have alot of other treatment options.