04-17-2012, 08:15 PM   #1
New Member
Join Date: Apr 2012
Location: Toronto, Ontario

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My success story

I was diagnosed in 1993 with Crohn's. I had a colon resection in 1994. Another in 2000. I was on Cipro and Flagyl with minimum syptoms until 2006 when I had serious flare ups and started getting perianal fistulas. The fistulas got worse and increased in number. After a half dozen surgeries to try to fix them the sugeon decided I should have an ileostomy to try and give everything the chance to heal. I didn't recover well from the surgery and my bowels refused to restart. I was in hospital over a month without eating and lost almost 50 lbs even on TPN. When I got out I was put on Remicade and the fistulas started to heal. I was able to have the ostomy reversed about five months later. I am still symptom free, back up to a normal weight (5' 11", 180) and have an excellent quality of life. I get Remicade every six weeks and always have a mild reaction where my head turns bright red and feels like it's going to explode. After a brief pause I'm good to go for the rest of the infusion which takes about 5 hours for me. All in all I'm pleased with how things are and keep my fingers crossed that the Remicade keeps working.
04-17-2012, 08:25 PM   #2
Senior Member
Join Date: Apr 2012
Location: Umina, New South Wales, Australia

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I love how positive you are. It's inspiring.
I really hope the best for you.
I hope you have less troubles after remicade.
04-17-2012, 11:04 PM   #3
Epic Rx Failure
New Member
Join Date: Apr 2012
Location: Santa Rosa Beach, Florida
I hope that you have success with Remicade. I too had problems with perirectal disease. I had a similar reaction to Remicade which increased with each infusion. I started to heal....on my 4th tx I had trouble breathing. Best of luck
04-18-2012, 03:55 PM   #4
Angrybird's Avatar
Join Date: Nov 2011
Location: Cambridge, United Kingdom

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Hello and welcome to the forum, I am pleased to hear that after the tough time you had that the Remicade is doing well for you Perhaps have a wander over to our remi sub forum which also includes the remicade club to let people there know how you are doing: http://www.crohnsforum.com/forumdisplay.php?f=58.

Hope to see you around the forum


DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
04-18-2012, 10:06 PM   #5
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Welcome and thank you so much for sharing your story
It's good to be back
04-19-2012, 03:46 PM   #6
a1000lies's Avatar
Join Date: Dec 2011
Location: New york, New York

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Thanks for sharing your story, I really hope your health stays on track you deserve to feel normal for a while. Good luck!

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