Hi, I was diagnosed in 1995. I probably had crohns for a number of years prior but the dr thought it was gastro, I have had 3 sub acute bowel obstructions by the time i got the diagnosis on the back of a collapsed gall bladder. The doctor i was seeing insisted on a colonoscoy and gastroscopy and then gave me the ''news'' ! I have had a lot of interesting times with this disease, but the drugs have caused me no end of difficulty. I went on endocort in 2002, within 3 weeks i had cushingoid syndrome, and my adrenal glands shut down, I tried imuran, 6mp, methotrexate, flagyl, and I have varying allergic reactions from pancreatitis, however been on Humira now for 2.6 years following toxic mega colon incident. The Humira has been fraught with side effects of hives everywhere, terrible sinus and surgery on my sinuses, and now intense pain in my lower legs, burning and cold, aching and numb pain from knees to toes. The humira is now stopped and i am back on prednisolone, and endep for pathway pain and endone for the pain. I don't know what is wrong, the rheumy has checked for lupus but ANA titre is 1:320 homoginised, and she thinks this is not that bad. I am not sure what happens next, but I think i am getting some sort of diabetes reaction to the cortisone as I am incredibly thirsty and off to the toilet a lot.
I am really hoping by joining this forum someone out there has had a weird reaction to Humira like I am having, because the doctor thinks i am depressed :yrolleyes: !!!
I really wish i was not as sensitive to medication as I am, it is bad enough I am lactose, fructose and have crohns, but to find i cannot take most drugs as well is seriously annoying
Linda
I am really hoping by joining this forum someone out there has had a weird reaction to Humira like I am having, because the doctor thinks i am depressed :yrolleyes: !!!
I really wish i was not as sensitive to medication as I am, it is bad enough I am lactose, fructose and have crohns, but to find i cannot take most drugs as well is seriously annoying
Linda
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