Hi all,
I am new to this forum and Internet usage, so bear with me! I was diagnosed in 1972, yes 40 years ago with Crohns. First in Calgary, Alberta.
then in 1977, I moved back to Boise, ID where I went to college and met my Canadian and 1st husband. In Canada treatment was new and unknown to most as they had little exposure to the disease. I had 2 bowel resections and 1 bypass where the right side of small intestine, still in me, has been left hanging. So the new position to colon always narrows and causes pain etc. I have colitis in part of my small and large colon as well. I was on Prednisone for 27 years and went through 2back surgeries as a result. I was addicted to it. I have gone the gamut of most drugs throughout the years as they found new treatments. Non worked as well as the biologics. I was on reimicade for five years. It ran its course so we then moved to Humira. After working 38 years, my health and my emotional state was at a total hell. I did receive disability at the age of 61, only because I was retirement age anyway. Now on Medicare and true blue, biologics are not covered. I am in the middle of leaving my doctor of 30 years and stopping Humira as it would run 12 to 15k a year out of pocket. I refuse to pay that with insurance payments and deductible as well. Another reason is, I broke my leg in feb and was off Humira for two months. Back on-it never kicked in. Now, the doctor who has supplemented me with sample Humira last year and not willing or able to anymore, why pay for something that may have run it's course?????:stinks:
I am on B12 shots, Effexor, vitamin d, Prevacid, and with the new GI that I will see in July imuran, and metrixate (sp). Through two divorces and one great husband who has been a great provider and supporter and friend, I am doing ok. I am just concerned about the direction I am taking. I have been down and out for so long except with the last 15 years with my now "friend" it is hard not to feel fear coming back. I am so weak, skinny, and tired. I am surprised anyone would befriend me. But I have survived two marriages, two kids, who are employed, married and two stepkids, who are employed, married and two stepgrandbabies and one future grandbaby. All healthy! So I have directed my good days at church and volunteering. I like to make cards, garden and watch movies. I play piano and write in my journal. AND love board games! I do like to hear from anyone, and maybe I can make you feel good!!!!!!! Love to all sufferers and God Bless!
Rosie::lol:
I am new to this forum and Internet usage, so bear with me! I was diagnosed in 1972, yes 40 years ago with Crohns. First in Calgary, Alberta.
then in 1977, I moved back to Boise, ID where I went to college and met my Canadian and 1st husband. In Canada treatment was new and unknown to most as they had little exposure to the disease. I had 2 bowel resections and 1 bypass where the right side of small intestine, still in me, has been left hanging. So the new position to colon always narrows and causes pain etc. I have colitis in part of my small and large colon as well. I was on Prednisone for 27 years and went through 2back surgeries as a result. I was addicted to it. I have gone the gamut of most drugs throughout the years as they found new treatments. Non worked as well as the biologics. I was on reimicade for five years. It ran its course so we then moved to Humira. After working 38 years, my health and my emotional state was at a total hell. I did receive disability at the age of 61, only because I was retirement age anyway. Now on Medicare and true blue, biologics are not covered. I am in the middle of leaving my doctor of 30 years and stopping Humira as it would run 12 to 15k a year out of pocket. I refuse to pay that with insurance payments and deductible as well. Another reason is, I broke my leg in feb and was off Humira for two months. Back on-it never kicked in. Now, the doctor who has supplemented me with sample Humira last year and not willing or able to anymore, why pay for something that may have run it's course?????:stinks:I am on B12 shots, Effexor, vitamin d, Prevacid, and with the new GI that I will see in July imuran, and metrixate (sp). Through two divorces and one great husband who has been a great provider and supporter and friend, I am doing ok. I am just concerned about the direction I am taking. I have been down and out for so long except with the last 15 years with my now "friend" it is hard not to feel fear coming back. I am so weak, skinny, and tired. I am surprised anyone would befriend me. But I have survived two marriages, two kids, who are employed, married and two stepkids, who are employed, married and two stepgrandbabies and one future grandbaby. All healthy! So I have directed my good days at church and volunteering. I like to make cards, garden and watch movies. I play piano and write in my journal. AND love board games! I do like to hear from anyone, and maybe I can make you feel good!!!!!!! Love to all sufferers and God Bless!
Rosie::lol:
