Crohn's Disease Forum » Books, Multimedia, Research & News » CNN - Living with Crohn's Disease

08-07-2012, 12:19 PM   #1
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CNN - Living with Crohn's Disease

This link will take you to the article which made me cry. It is an inspirational read, and an emotional one, being so close to so many of our hearts. Comment to tell me what you think about this amazing article.
08-07-2012, 12:53 PM   #2
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Location: Kangasala, Finland

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That really makes me cry too! That writing is so our life. That really is what is living with Crohn's.
Severe Crohn's since 2002. Tried every longterm medicine there is, Pentasa, Azamun, Remicade, Humira...
Temporary colostomy 2013 -> Parastomal hernia
Surgery, mesh, end colostomy 2014 -> deep wounds that didn't heal, three fistulas around stoma
Colon removal and ileostomy 2015 -> So far so good

And after every stoma surgery, nasty Pyoderma Gangrenosum around my stoma.
08-07-2012, 03:01 PM   #3
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Location: Cranbrook, British Columbia
Oh my goodness. I am in tears. There is a part of me in alot of those stories. Very powerful . We are not alone.
08-07-2012, 04:31 PM   #4
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Location: Portland, Maine
Thank you for posting that link.
08-07-2012, 05:16 PM   #5
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Wow, very powerful, thanks for posting.
08-07-2012, 05:30 PM   #6
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Location: Columbus, Ohio
Excellent! Thanks for posting this.
dx UC May 2010, changed to Crohn's May 2012
Remission - off/on a couple times
Flares in colon/rectum
Fistulas, fissures
Mild flare colon/rectum presently

Previous medications - Lialda, Remicade
Currently taking Humira, 40 mg prednisone,Balsalazide (9 750 mg daily), Fish oil, Calcium/Magnesium/Zinc, D3-5000IU, B-12, multi-vitamin
08-07-2012, 06:04 PM   #7
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This article literally brought me to tears. The part about about children being one step closer to a diagnosis the day their parents are diagnosed just crushed me.

"Please, God, I pray... put all your wrath on me and spare my only child from this dreaded condition."
08-07-2012, 08:23 PM   #8
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It's such a powerful and emotional read. It's so inspirational too! We should share our stories to bring attention to this disease, which so little people have even heard of let alone know anything about it. When we bring attention, then awareness sets in and people get involved in whole communities to find a cure and give peace and hope to the people suffering. This was very inspirational, an emotional read, no doubt, since it's so close to our hearts.
08-07-2012, 10:48 PM   #9
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Location: Alabama
It didn't make me cry but it was a pretty good article. Nice to finally read something that doesn't downplay the pain of Crohn's and end with "but remmission is possible!" We all know just by reading these posts on the forum that remission is a hard find.

Thanks for sharing!
Current medication:
Steroid suppositories
Canasa suppositories

Diet: Feeding via J-tube

DX: Crohn's Disease, Juvenile Rheumatoid Arthritis, Endometriosis, Gastroparesis

Previous Medications:
Remicade- Drug Induced Lupus, Humira, Prednisone,
Entocort, 6MP, Methorexate, Amitriptyline, Asacol, Flagyl, Apriso, Cimzia, Cipro, Sulfasalazine etc. You name it, I've tried it.
08-13-2012, 12:32 AM   #10
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Location: woodbridge, Virginia
That was a great article. I forget that others go through the same things or even worse than me. I have been through so much pain through this disease as well as feeling the comfort of being home where it feels "safe". Going out anywhere I started to realized I would only go out if I felt I could make it there and back without having to go to the bathroom. Even then sometimes it just hits you. Anyway, great article, definitely can relate.
08-19-2012, 09:01 PM   #11
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Location: Los Gatos, California
Thank you for posting that article. As newly diagnosed, this was very informative and it was "good" (if you will) to have something to read to my husband that is relatively current and in mainstream media.

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