Crohn's Disease Forum » Support Forum » Vent Away » Sick of prednisone

08-22-2012, 08:45 PM   #1
Vonnie's Avatar
Join Date: Jun 2012
Location: Louisiana

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Sick of prednisone

Just want to vent. Prednisone and entocort are doing a number on me. My skin feels tight from either fluid retention or swelling all over my body. I have wierd pains and numbness, dry skin, headaches, muscle spasms, mood swings, moon face, etc. Don't know if its the swelling or what. I hate this and it sucks. I have a horrendous headache and feel like I'm 100 years old tonight. I am tapering off the pred and it seems like my symptoms have gotten worse: fluid retention and at night I have palpitations and feel like I can't breathe. Still having symptoms from crohns so I know these meds aren't working. Stress at work does not help. Sorry. I just needed to vent. I am soooo tired of people telling me my face is swollen; like I don't know it already. I am feeling really down although I keep trying to remember that it could always be worse.
08-22-2012, 09:50 PM   #2
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Thermo's Avatar
Join Date: Jul 2012
Location: NorCal, California
Hows your Iron level? I know just bear through it, it will get worse as you taper but once you are off you will feel much better just hang in there.
Diagnosed-1992 (Age 8) Regional Enteritis 555.0

Meds - Humira, B-12 Injections, Vitamin D, Iron, VSL#3

Surgery - Open Ileocolic Resection July 24, 2012 (44cm removed 17 inches including appendix)

My Advice: Find a good GI, Primary Doctor, Optician, and spouse and stick with them, don't be afraid of the Biologics and 6 MP's if you hit the disease hard at diagnosis you fight off the natural progression and have a better quality of life.
08-23-2012, 12:48 AM   #3
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sfmreb2's Avatar
Join Date: Jan 2012
Location: walla walla, Washington
My face was so fat once (from pred) that my mother did not recognize me. t did get better and it got me through many times. Hang in there.
08-23-2012, 06:22 AM   #4
Vonnie's Avatar
Join Date: Jun 2012
Location: Louisiana

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Thanks you guys. I feel a little better this morning except for this headache. I can't seem to get rid of it. I see my dr today.
08-23-2012, 10:52 AM   #5
Senior Member
Trevor's Avatar
Join Date: Sep 2011
Location: Vancouver, British Columbia
Just started pred again as well. Not looking forward to the shakes and round face and probably the acne it gave me last time.

Hang in there though it really does help!

- Are you looking for a new treatment option for your Crohn's disease? If so, I suggest you look into the ongoing clinical trial by Qu Biologics for their SSI treatment. Click here for more information or to help spread the word.
08-25-2012, 12:42 AM   #6
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sickinlk's Avatar
Join Date: Jul 2012
Location: Donegal, Ireland

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im going down to 5mg moro and my face just broke out in spots. grrrrrrrrrrrrr.
i also get palpatations and the shakes and a fat face and excess hair everywhere!!!
! more week, 1 more week........

08-25-2012, 01:00 AM   #7
Senior Member
Keepingfaith's Avatar
Join Date: May 2012
Location: Alabama
Hang in there! I hate it to so I'm not even going to say "it gets better" because that doesn't help the situation. I've been on it for almost a year. If it helps any, yesterday a acquantence of mine asked why my face hasn't gone down since my wisdom teeth surgery last year. I haven't had wisdom teeth surgery. I guess he didn't know Prednisone causes moon face ! I've also gotten "You look like a fatty from neck up but from neck chest down you look anorexic."

Drink lots of water and take folic acid, B12 & zinc supplements. It has helped my hair loss/prednisone belly so much!
Current medication:
Steroid suppositories
Canasa suppositories

Diet: Feeding via J-tube

DX: Crohn's Disease, Juvenile Rheumatoid Arthritis, Endometriosis, Gastroparesis

Previous Medications:
Remicade- Drug Induced Lupus, Humira, Prednisone,
Entocort, 6MP, Methorexate, Amitriptyline, Asacol, Flagyl, Apriso, Cimzia, Cipro, Sulfasalazine etc. You name it, I've tried it.

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