Hi All,
I've been reading this forum for a few weeks so I figured it was time that I share my tale of woe. It all started for me early this year. I started having pain in my upper right quadrant infrequently. I assumed it was an ulcer, because I had an ulcer that was successfully treated about 9 years ago. I decided not the seek medical help and just doubled up on my Omeprazole. Fast forward a few months and vomiting started. At that point, I saw my doctor, he suspected and a sonogram confirmed gallstones. When I had my gall bladder removed, my "recovery time" went horribly. I actually got sicker as time went on. Finally someone decided to do an EGD and through a series of events I was diagnosed with Duodenal Crohn's about 6 weeks ago.
Twice my duodenum has completely closed off due to inflammation leading to hospitalization. Prednisone hasn't helped at all. Now we are trying Humira. I'll be taking my 3rd dose tomorrow (start of the 5th week). There are still no signs that it is working. My doctor has been doing weekly EGDs for the last 3 weeks to dilate my duodenum and keep it open long enough to give my Humira a chance to work. However, it sounds like he's starting to lose hope in this plan. Assuming that things continue as they are, I'm probably looking at having surgery to cut a new hole in my stomach sometime in the coming weeks or months. This scares me tremendously.
Anyway, that's my tale so far, It turned into a novel, so I'm sure it'll go unread, but I wanted to join in on the action.
Has anyone successfully treated duodenal crohn's with Humira?
I've been reading this forum for a few weeks so I figured it was time that I share my tale of woe. It all started for me early this year. I started having pain in my upper right quadrant infrequently. I assumed it was an ulcer, because I had an ulcer that was successfully treated about 9 years ago. I decided not the seek medical help and just doubled up on my Omeprazole. Fast forward a few months and vomiting started. At that point, I saw my doctor, he suspected and a sonogram confirmed gallstones. When I had my gall bladder removed, my "recovery time" went horribly. I actually got sicker as time went on. Finally someone decided to do an EGD and through a series of events I was diagnosed with Duodenal Crohn's about 6 weeks ago.
Twice my duodenum has completely closed off due to inflammation leading to hospitalization. Prednisone hasn't helped at all. Now we are trying Humira. I'll be taking my 3rd dose tomorrow (start of the 5th week). There are still no signs that it is working. My doctor has been doing weekly EGDs for the last 3 weeks to dilate my duodenum and keep it open long enough to give my Humira a chance to work. However, it sounds like he's starting to lose hope in this plan. Assuming that things continue as they are, I'm probably looking at having surgery to cut a new hole in my stomach sometime in the coming weeks or months. This scares me tremendously.
Anyway, that's my tale so far, It turned into a novel, so I'm sure it'll go unread, but I wanted to join in on the action.
Has anyone successfully treated duodenal crohn's with Humira?