Hi all. I don't even know where to start with my story...
Two years ago I experienced the most intense stabbing pain in my abdomen about two inches to the right of my navel. Eventually it passed and I tried to write it off as a fluke. The pain kept coming back, sometimes intense and quick and sometimes low grade lasting for days. After finally admitting to myself that something was wrong and after being misdiagnosed and handed off to many, many doctors I finally had a CT scan that showed that "something" on my colon. A few days later I had a colonoscopy where the doctor encountered a mass so large in my ascending colon he couldn't get the scope past it. Turns out I had stage II colon cancer. I was 35.
I had half my colon removed (and genetic testing - I do not have Lynch syndrome) and had been healing pretty well. I was having off and on bowel issues that I attributed to losing half my colon. I also have very low vitamin d and b12 (need to get weekly injections) and arthritis in my low back. However, over the past four months I've had chronic diarrhea, sometimes going 15 times a day and the pain was back, though not as intense, in same place where my tumor had been. Sometimes I will have quite bad pain across my abdomen as well. I also get night sweats and the fatigue is like NOTHING I've ever experienced before. Even when I was going through cancer.
I have a pretty great GI doctor who put me on cipro (didn't help), had a stool test (negative) and prescribed colestipol to help with bike salts since I no longer have an ileocecal valve (has maybe helped a little or I'm just trying to convince myself).
I had my yearly colonoscopy last Thursday and my doctor saw some inflammation across my colon but saw a lot of inflammation at the site of my tumor/surgery. He said it looked like Crohn's but we'll have the biopsy results back in about a week. At first I was pretty devastated by the though of yet another chronic, lifelong disease of my bowels where the best I can hope for is remission. But at this point I have been so sick and miserable that if we can put a name to it and get a treatment plan going I will be over the moon.
Anyway, Sorry for the long introduction! Even if it turns out not be Crohn's I feel like colorectal survivors and those with CD and UC are all kindred spirits!
Two years ago I experienced the most intense stabbing pain in my abdomen about two inches to the right of my navel. Eventually it passed and I tried to write it off as a fluke. The pain kept coming back, sometimes intense and quick and sometimes low grade lasting for days. After finally admitting to myself that something was wrong and after being misdiagnosed and handed off to many, many doctors I finally had a CT scan that showed that "something" on my colon. A few days later I had a colonoscopy where the doctor encountered a mass so large in my ascending colon he couldn't get the scope past it. Turns out I had stage II colon cancer. I was 35.
I had half my colon removed (and genetic testing - I do not have Lynch syndrome) and had been healing pretty well. I was having off and on bowel issues that I attributed to losing half my colon. I also have very low vitamin d and b12 (need to get weekly injections) and arthritis in my low back. However, over the past four months I've had chronic diarrhea, sometimes going 15 times a day and the pain was back, though not as intense, in same place where my tumor had been. Sometimes I will have quite bad pain across my abdomen as well. I also get night sweats and the fatigue is like NOTHING I've ever experienced before. Even when I was going through cancer.
I have a pretty great GI doctor who put me on cipro (didn't help), had a stool test (negative) and prescribed colestipol to help with bike salts since I no longer have an ileocecal valve (has maybe helped a little or I'm just trying to convince myself).
I had my yearly colonoscopy last Thursday and my doctor saw some inflammation across my colon but saw a lot of inflammation at the site of my tumor/surgery. He said it looked like Crohn's but we'll have the biopsy results back in about a week. At first I was pretty devastated by the though of yet another chronic, lifelong disease of my bowels where the best I can hope for is remission. But at this point I have been so sick and miserable that if we can put a name to it and get a treatment plan going I will be over the moon.
Anyway, Sorry for the long introduction! Even if it turns out not be Crohn's I feel like colorectal survivors and those with CD and UC are all kindred spirits!