Our son was diagnosed with Ulcerative Colitis about 5 years ago when he was seven. We have seen multiple GI specialist due to a recent move and just finished with another round of tests at the Mayo Clinic in Rochester, MN for one final expert opinion.
Before Mayo, the GI doctors started off with Sulfsasalazine, then moved into Prednisone during a severe flare and when that didn't do the trick they decided to startup the Remicade infusions. This worked and our son stayed on this for about a year when it was decided to back off Remicade and try some other maintenance drugs that were skipped as a result of the severe flare episode. The other meds were Asacol, Azathioprine and Imuran. He also had other rectal medications used for treating Proctitis.
After meeting with the Gi Specialist at the Mayo Clinic, it was determined we should move towards Humira. The injections just started late last week and both my wife and I are nervous on starting up another TNF blocker again at such an early age with the side effects that come with them. We wonder if we should push harder for surgery, but hold off because of the finality of such a decision.
We're telling you this to see if there are others out there with a similar dilemma and what was decided on your end. We are also looking for some support from other parents who have a child with ulcerative colitis.
This site looks like we are in the right place and we hope to hear from you soon.
Thanks
Before Mayo, the GI doctors started off with Sulfsasalazine, then moved into Prednisone during a severe flare and when that didn't do the trick they decided to startup the Remicade infusions. This worked and our son stayed on this for about a year when it was decided to back off Remicade and try some other maintenance drugs that were skipped as a result of the severe flare episode. The other meds were Asacol, Azathioprine and Imuran. He also had other rectal medications used for treating Proctitis.
After meeting with the Gi Specialist at the Mayo Clinic, it was determined we should move towards Humira. The injections just started late last week and both my wife and I are nervous on starting up another TNF blocker again at such an early age with the side effects that come with them. We wonder if we should push harder for surgery, but hold off because of the finality of such a decision.
We're telling you this to see if there are others out there with a similar dilemma and what was decided on your end. We are also looking for some support from other parents who have a child with ulcerative colitis.
This site looks like we are in the right place and we hope to hear from you soon.
Thanks