Right well if I'm going form the start,
I was 11 years old when I started having problems, just around the time I was taking my s.a.t.s and so it was all put down to stress. But obviously, it wasn't, thought the years I spent a lot of time with different doctors, having different tests as per the usual,
I think it was really serious when I was put into hospital for a week, on a drip, couldn't take anything down. Since then I was on everything,
Pentasa
Steroids
Fortisip
Loperamide
Azapazirothine (can never spell or pronounce this one)
And recently allaprunol? Which is usually used for gowt I believe?
They still haven't really decided whether its crohns or ulcerative colitis.
All started 10 years ago, I'm now nearly 21, a new combination of tablets keeps me fine, I have full control, I'm able to get on with life as if I don't have it, (well apart from the 18 tablets a day).
I've recently started a new job which looks to be a solid career, I am able to get on stage and perform, sing, play guitar ( my passions ) still no love in my life as yet though!
So yeah that's my story really? ( hardly publishable work haha)
Just a few things,
- I found that having the disease totally out of control during my teens ( and I mean I was okay for 25% of a year for 10) it seriously effected my confidence, I mean put me on a stage and I'm fine, but in normal situations I feel like the quiet one, don't get me wrong I've never been the one to make a whole room stop, but I feel that the constant accidents and issues stopped me feeling comfortable in certain situations, some still now. Anyone else get this?
- Also, I know some of the symptoms can be lethargic nature and depression, I defiantly have these especially the first one! Like to sleep wayyyy to much! And like most other people, there are days when I really hate the world, I feel upset for the 10 years of trouble I had. Music defiantly helps this, I would never stop to recommend the power of music in all situations
I knew of these sites since I was 13ish, my dad did a lot of work trying to make me feel comfortable with it ( still remember the car ride home from the hospital where he said I would have this for the rest of my life, still a nightmare to me). I probably don't give him and my mum enough credit for how much they have helped me with it all.
Anyway I knew about these sites, but never came into them as I felt, as though if I ignore it all it will be like its not happening, still do sometimes. But wanted to post something now I'm in a different place with it all, also I feel like I need some people who can relate.
Hope you could take something from my story, if not then:
What we have is a horrible thing, and its even worse that its not going to go away, and its hard, but it can be managed
I was 11 years old when I started having problems, just around the time I was taking my s.a.t.s and so it was all put down to stress. But obviously, it wasn't, thought the years I spent a lot of time with different doctors, having different tests as per the usual,
I think it was really serious when I was put into hospital for a week, on a drip, couldn't take anything down. Since then I was on everything,
Pentasa
Steroids
Fortisip
Loperamide
Azapazirothine (can never spell or pronounce this one)
And recently allaprunol? Which is usually used for gowt I believe?
They still haven't really decided whether its crohns or ulcerative colitis.
All started 10 years ago, I'm now nearly 21, a new combination of tablets keeps me fine, I have full control, I'm able to get on with life as if I don't have it, (well apart from the 18 tablets a day).
I've recently started a new job which looks to be a solid career, I am able to get on stage and perform, sing, play guitar ( my passions ) still no love in my life as yet though!
So yeah that's my story really? ( hardly publishable work haha)
Just a few things,
- I found that having the disease totally out of control during my teens ( and I mean I was okay for 25% of a year for 10) it seriously effected my confidence, I mean put me on a stage and I'm fine, but in normal situations I feel like the quiet one, don't get me wrong I've never been the one to make a whole room stop, but I feel that the constant accidents and issues stopped me feeling comfortable in certain situations, some still now. Anyone else get this?
- Also, I know some of the symptoms can be lethargic nature and depression, I defiantly have these especially the first one! Like to sleep wayyyy to much! And like most other people, there are days when I really hate the world, I feel upset for the 10 years of trouble I had. Music defiantly helps this, I would never stop to recommend the power of music in all situations
I knew of these sites since I was 13ish, my dad did a lot of work trying to make me feel comfortable with it ( still remember the car ride home from the hospital where he said I would have this for the rest of my life, still a nightmare to me). I probably don't give him and my mum enough credit for how much they have helped me with it all.
Anyway I knew about these sites, but never came into them as I felt, as though if I ignore it all it will be like its not happening, still do sometimes. But wanted to post something now I'm in a different place with it all, also I feel like I need some people who can relate.
Hope you could take something from my story, if not then:
What we have is a horrible thing, and its even worse that its not going to go away, and its hard, but it can be managed
