Hello all, stopping by to give our story (my son and I)
My little boy was 6 going on 7 when he was diagnosed with Crohns. Never having diarrhea , more like constipation. The constipation eventually tore his anal area, to the point where he began dealing with inflammation in the rectal area. He had a fistula so big a grown man could stick his fist inside of it. (Can't explain how many tears I've cried, or how many nights I told God I was done talking to him.)
He then began to suffer from stomach pains and cramps. It got to the point where he couldn't walk, stand or sit. We started him on Remicade before finally deciding to give him an ostomy for a few years so his bottom could properly heal.
We can also include the eczema he has and the psoriasis he developed from the medicine he was taking, as well as the anemia he continues to battle. (oh how that all has gotten better!)
During the years I never knew my child could get so sick. I watched he become afraid of the toilet, walk around like a mummy because of the loss of blood. All of these things I had no clue about. During the beginning phase I was clueless to what was going on and why it was happening. So I went through a stage of confusion and overwhelmed nights.
After tons of doctors, surgeries, and medicines I decided to take it upon myself to be my son's first doctor. Long nights of research, evaluations, different natural medicines, western medicines is finally getting us moving in the right direction.
It's still a long road but we are traveling it together, healing together. My heart has become a lot more light hearted over the past months and that is why I am so much more involved in the Crohns community.
Time,patience and perseverance are the three important keys to putting Crohns in it's place. All things take time, time takes patience and patience takes a hell of a lot of perseverance.
My little boy was 6 going on 7 when he was diagnosed with Crohns. Never having diarrhea , more like constipation. The constipation eventually tore his anal area, to the point where he began dealing with inflammation in the rectal area. He had a fistula so big a grown man could stick his fist inside of it. (Can't explain how many tears I've cried, or how many nights I told God I was done talking to him.)
He then began to suffer from stomach pains and cramps. It got to the point where he couldn't walk, stand or sit. We started him on Remicade before finally deciding to give him an ostomy for a few years so his bottom could properly heal.
We can also include the eczema he has and the psoriasis he developed from the medicine he was taking, as well as the anemia he continues to battle. (oh how that all has gotten better!)
During the years I never knew my child could get so sick. I watched he become afraid of the toilet, walk around like a mummy because of the loss of blood. All of these things I had no clue about. During the beginning phase I was clueless to what was going on and why it was happening. So I went through a stage of confusion and overwhelmed nights.
After tons of doctors, surgeries, and medicines I decided to take it upon myself to be my son's first doctor. Long nights of research, evaluations, different natural medicines, western medicines is finally getting us moving in the right direction.
It's still a long road but we are traveling it together, healing together. My heart has become a lot more light hearted over the past months and that is why I am so much more involved in the Crohns community.
Time,patience and perseverance are the three important keys to putting Crohns in it's place. All things take time, time takes patience and patience takes a hell of a lot of perseverance.