10-19-2012, 12:07 AM   #1
Join Date: Oct 2012

Our daughter has Crohn's, down syndrome, achalasia, thyroid problems, diabetes, and an ostomy, and she had a psychotic episode and no longer speaks. We do not know what pain she may be feeling or where that pain, ache, whatever is localized. She has a very high tolerance for pain and rarely shows discomfort, so we have a hard time trying to figure out what she is experiencing. We would appreciate any input anyone may have on what living with Crohn's is like. Thank you.
10-19-2012, 12:38 AM   #2
Cross-stitch gal
Cross-stitch gal's Avatar
Join Date: Dec 2011
Location: Vancouver, Washington

My Support Groups:
Welcome to the forum I'm afraid that each of us with crohn's may be a little different. So, there is no one exact diagnosis. But, here are a few things that I have seen with my time with crohn's. Hope this might help some.

-Stomach pain when hungry/full
-Diarrhea/stool with blood
-Dripping blood from the anal area into toilet
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday

UP Support Group http://www.crohnsforum.com/showthread.php?t=68350
10-19-2012, 10:16 PM   #3
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Hi Thales.

Wow, your poor daughter My heart goes out to your entire family.

The best advice I can give is read the stories of members here. Their experiences should give a pretty good insight into what life with Crohn's can be like. You'll see both ends of the spectrum and everything in between.

All my best to you.
It's good to be back

Thread Tools

All times are GMT -5. The time now is 03:37 PM.
Copyright 2006-2017 Crohnsforum.com