12-11-2012, 05:19 PM   #1
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Farmwife's Avatar
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Location: Michigan

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Vit. D Levels?

The new GP told me that Grace has low vit. D levels.

So here's the questions.
What role does vit. D play in your health?
Any "rules" to taking vit. D?

I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
12-11-2012, 05:56 PM   #2
my little penguin
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Vitamin D is a chicken egg sorta thing.
It can be low in kids due to inflammation ( general) including asthma .
So northern kiddo with asthma and allergies= low vitamin d.
Especially non milk drinker since most little kids get theirs from milk.
It can also be low in Ibd kids but given she has asthma .
That would be a given.
You would have to ask the doc about supplementing.
DS - -Crohn's -Stelara -mtx
12-11-2012, 05:57 PM   #3
my little penguin
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Vit D is used to fight inflammation so if you have inflammation your vitamin d is lower also used for good bone health .
12-11-2012, 08:40 PM   #4
D Bergy
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Join Date: Apr 2007
Vitamin D is fat soluble so if you take a supplement, it should be taken with food with some fat in it. I often take mine with a spoonful of coconut oil.

It is important to keep higher levels of D for many reasons. It acts more like a hormone than a vitamin.

Sunlight is the best way to get enough. In my climate that is difficult.

Doctors often prescribe D2 but the body is lacking D3 and that is the form you should use. D2 does not occur naturally in the human body.

Nothing I post here is to be construed as medical advice. I am not a doctor or health professional.
They are simply my opinions.
12-11-2012, 09:54 PM   #5
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My Vitamin D is low not Sarah's.

When I first started taking Vitamin D, my skin was very itchy, this only lasted a couple of weeks. I started on a reasonly high dose of 3000mg daily.

Your gp should tell you how much to supplement.
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
12-11-2012, 11:56 PM   #6
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Did the new GP test her vitamin D levels today or was this from a previous test?
It's good to be back
12-12-2012, 12:35 AM   #7
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SarahChoueiry's Avatar
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Location: Los Angeles, California
I do as well, common with people who have crohns. I take a prescribed supplement 1 time a week.
12-12-2012, 01:57 AM   #8
Calypso's Avatar
Join Date: Nov 2012
Location: Los Angeles, California
A year ago I was severely ill with symptoms that mimicked Hypothyroidism so I went to an Endocrinologist and my Vit D levels were below the normal range. I had to take 50,000 IU for 5 weeks and it jump-started me back to health. Now I take a multivitamin everyday, as well as sub-lingual Vitamin D to help keep it normal. I mostly take the sub-linguals because I am lactose intolerant and can not get much Vit D from food/milk. I highly recommend the sub-linguals, they do not upset your stomach (while the actual Vit D tablets can wreaked havok ). Good Luck!
01-05-2013, 06:51 PM   #9
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I recently was told my vit D level was extremly low so i was prescribe vitamine D and also oysco for you bones.I eat frosted flakes and also eggs.I didnt care for vitamine D gels but I did take complete and they seem to work fine.I was never told the reason why it was so low
01-05-2013, 07:15 PM   #10
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Michigan gets so little sunshine. I now give everyone in my family a Vit D supplement. I am hoping that it might possibly prevent my daughter from someday suffering from some sort of autoimmune disorder.
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
01-06-2013, 07:58 AM   #11
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Join Date: Apr 2011
I get mine checked regularly, partly because of this forum and posts people made about Vitamin D which made me look into it.

Vitamin D is related to NOD2, NOD2 is responsible for defensin release and autophagy, it uses ATG16L1 to induce autophagy against bacteria, but people with crohn's disease often have mutations in NOD2 and ATG16L1, they are immune deficient.

High vitamin D might be able to correct this immune deficiency in autophagy by stimulating NOD2. Vitamin D is an antimicrobial vitamin like vitamin A.

If you want to actually read it all, this is the best explanation I know: http://www.expert-reviews.com/doi/pdf/10.1586/eci.10.31

What's interesting also, is that not only low serum vitamin D is associated with crohn's disease, the VDR gene, the receptor for Vitamin D, is one of the genes often mutated in crohn's disease. Vitamin D is probably more important to crohn's disease than many doctors realise.

Last edited by kiny; 01-06-2013 at 08:48 AM.
01-06-2013, 11:25 AM   #12
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Location: Michigan, USA
Rowans vit D was also low, not horribly low but low enough, ask the doctor they have Rowan taking 2000mg of D3 daily. It should be supplemented. Do they think the EEN will take care of this without supplementation? Might be the case. Hugs
01-06-2013, 11:51 AM   #13
my little penguin
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DS was low as well--
His Gi said the formula would help.
His recent numbers were normal
01-07-2013, 04:54 AM   #14
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Join Date: May 2010
Location: New South Wales, Australia
I personally believe that Vit D plays a role in Crohn's but don't ask me how cause I don't know!

I asked that Matt levels be tested quite some time ago and they were low. We started supplementing with D3 gel caps and his levels are now in the lower therapeutic range and we are still supplementing.

Sarah also takes Vit D supplements.

Just through my own research: As Dan said, ensure it is D3 and gel caps have better absorbency than tablets.

Dusty. xxx
Mum of 2 kids with Crohn's.
01-07-2013, 05:44 AM   #15
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Lucy is parcipating in a study which is looking at vit d levels and paediatric Crohn's, however she is completely bumping the trend and her levels are always excellent - even with her levels as good as they are GI recommends supplement so she takes that as well.
01-07-2013, 06:51 AM   #16
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Polly - Same with Claire (not the study but the levels)


Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP

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