Crohn's Disease Forum » Treatment » Remicade/Infliximab » Worse before better?

12-16-2012, 04:31 PM   #1
Join Date: Aug 2012
Location: Bellevue, Nebraska
Worse before better?

My son received his second Remicade treatment 12 days ago. His fistula closed within the first week after treatment and looked great when I looked again the other day. Then last night, it was open and bleeding. He woke up crying from stomach pains this morning. This happened after his first treatment with the exact same timing. He hasn't had pain this bad since he was diagnosed with crohn's. Did anybody else get "worse" before better when they started Remicade? I will be calling his doctor tomorrow, but I am sure we will get no direction as usual.

12-17-2012, 03:07 PM   #2
Senior Member
moogie's Avatar
Join Date: Jan 2011
Location: Boisbriand, Quebec
Hello Jessica, it's really unfortunate that your son suffers so. My remi treatment started to work after my fourth infusion. yes it is possible that he will feel better soon. everybody is different some faster as others takes longer.

all my good wishes for your son!
I'm the Rat Man!!
DX - CD summer of 1987
Current Meds -
Getting Remicade every 8 weeks
Getting 5mg now. full dose. cost 5500$ )
Purinathol 75mg a day

3 resections
2 colostomy
One Ileostomy
Back to normal since May 2015
On Remicade Since April 2011 I am alive again!

Crohn's Disease Forum » Treatment » Remicade/Infliximab » Worse before better?
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