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Sick & tired of being sick &tired!!!

Hello, Everyone! Let me start by saying that I am NOT the patient. I do have several serious health problems, however, my husband is the Crohn's victim. I don't know whether or not he would want to discuss his health issues online with anyone, but I feel like if I don't talk to someone, they might have to add insanity to my list of health problems! So, here's our story...

7 years ago, after being sick for quite some time already, my husband finally broke down and went to the doctor. He had what seemed like constant pain & diarrhea and it had caused (as I am sure some of you know) rectal issues. He had tearing and. when the specialist examined him, he sent him straight to the hospital for emergency surgery. Boy, did my life change! I will never forget when the surgeon explained that the only thing that could cause all the damage that found during surgery was Crohn's Disease. I immediately started crying, so he began to try to comfort me by saying things such as "totally treatable" and "he'll be the same fun guy he's always been" and "it's not like your life has just drasticly changed"! I'm not sure if he intentionally lied just to get me to stop crying or just had no clue what he was talking about, but either way, he was completely and utterly WRONG. Here it is, Christmas morning, and IT don't know if he'll even get to watch our 10-year-olds open their gifts. He got out of the hospital the night before last, (another obstruction-was supposed to stay through Christmas but he was feeling better so they let him come home for Christmas and are going to do everything else out-patient) but now, considering he woke up extremely sick this morning, I am beginning to wonder what the point was- he'll probably be back in there by the end of the day....
 

Trysha

Moderator
Staff member
Hello Brandonsgirl
How devastating for you both and hopefully things will improve.
Is your husband receiving treatment besides surgery.?. Remicade can be a very good drug to achieve remission and there are others available.
You will find the forum very helpful if you take a look around ,loads of information on many options.
Also there will be others who have had similar experiences and I am sure will be along with helpful advice.
Feel better soon
Hugs and best wishes
Trysha
 
Hi Bradonsgirl, I'm new at this and is my first time writing on this forum but being Christmas I hope I could give u some comfort. I've had Crohn's for almost ten years now, and just had my second surgery 5 weeks ago. It's tough no doubt, but with experience things will get better with time. The incision line hurts when I cough, sneeze, laugh etc. but hugging a pillow helps and a heat pad for the pains help. I was in the hospital for 2 weeks post surgery and when the dietician advised me to eat a very very low fibre diet for the first 3 weeks, avoid raw veggies, raw fruits, seeds, nuts, veggies with skins. So basically macaroni cheese, protein with mash, oatmeal, that's the kind of stuff they were giving me in the hospital. For the first 4 weeks I followed this diet and felt good. It seemed like my bowel movements were back to normal (normal being 2/3 times). I continued to take pain killers, Tylenol every 4 hours for the pains and tried to do a little bit walking if I could.
Now week 5 I've gone downhill. Was back in the hospital, cough, fever, really bad body aches, bleeding again, and bm's of 6-8 a day that I'm scared to eat now.
But that's how I got thru my first 4 weeks and if its his first surgery he'll recover alot faster cause I know I did. And my life was almost back to normal the first time.
Goodluck and just be patient.
Merry Christmas!!
 

nativesith

GTA ModLeader Psx-Scene
Location
Hobbema,Alberta
Doctors?! OMG?! I ave had a similar experience. I ave had docs say I could ve and should ve been working since I went into the ER with the worst pain I felt in my life. I ave been saying every crohn's symptoms for over five years(I really ave had then since I was five years old). They tell me that I will be up to that point where I could hold down a job. I know that not to be true. Eating scares me, today is the worst. Holiday dinners seem to upset it really bad. I ave waken up like your husband many times and I too am sick of feeling sick for soo long.
However, since I found this site my life has gotten better. They ave given me soo much I can not thank everyone enough ere. They informed me that every medication my family doctor was in fact making it all worse?! That was the best, I feel well informed now when I go to the Clinic/hospital. I am also getting a new doctor.:lol: They ave given me soo much info on diet ,which is really helping helping me lately. Open your heart and listen, your life will get better with the help you get ere.
May the creator bless and help us through our pain on this the most holy of all days.
Hai Hai (Thank you) and Merry Christmas.
 

David

Co-Founder
Location
Naples, Florida
Hi there and welcome to the community.

Like others, I wonder if you can provide us more information so we might be able to steer you in the correct direction. Can you provide:

1. List of medications your husband is on and been on in the past.
2. Any surgeries he has had.
3. His symptoms, even minor symptoms.
4. Where his disease is located such as small intestine, large intestine, or both.

Thank you! And again, welcome.
 
Sorry, for some reason my last post was missing part of a few sentences? When I proofread and tried to fix it, my tablet went ahead and posted it. Idk, its a new tablet, guess I'm just not used to it yet. Anyway, I think for the most part I got my point across. Hope so!
 
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Sorry you've had such a rubbish time! Big hugs to u but well done for finding us there are many crohns and uc partners here!
Big welcome! Agree with David would u be able to share more info?

Hannah xx
 
This is crazy! Sorry, guys, but this is twice now that I have tried to post a very long, detailed, and time-consuming post and at the last minute it erases it instead of posting it. I'm sorry but I don't have time to do it AGAIN right now as I am headed to the doctor. It is probably my new tablet, I am just not used to it yet. I may try again later on my pc.
 
sorry to hear your story, i can totally simplise with you. My toher half is sick of me being sick and tired all the time. Some days he will feel good the other rubbish its the nature of the disease unless he is lucky to go into remission.

Hopein gthe best that things start to level out for you.
 
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