01-08-2013, 10:12 AM   #1
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izzi'smom's Avatar
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Location: New York

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Dental cavities

Izz just had a cleaning and I am SHOCKED that she has a cavity! (Well, not visible, but one of the fancy machines they use says she does).

I can't help but wonder if it is related to a calcium deficiency related to Crohns...anyone have any experience?
Angie, mom to Izzi,10 Crohn's Colitis 1/11 prednisone, entyvio since 2015 Tried: Tacrolimus, Bactrim, simponi, Levsin, Prevacid, Prednisilone, Humira, Remicade, EN via ng, vancomycin, Pentasa, carafate, Sulfasalazine, Cortifoam enemas, dietary changes, fish oil, VSL#3.
01-08-2013, 10:27 AM   #2
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Location: Michigan

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crohnsinct might be able to help. I think O has dental problems.

I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
01-08-2013, 10:30 AM   #3
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Location: Plainville, Connecticut
Our Izzy has cavities in both front teeth at 3 and a half. I think it's something to do with how she holds her upper lip against her teeth all the time, very tight. I've got to get her to a dentist as soon as I figure out this mess with my FSA/HSA...
01-08-2013, 10:34 AM   #4
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I know Johnny lost a tooth and the darn thing literally broke in half it was so fragile. I called the dentist and she said it wasn't completely abnormal. But I am with you, I can't help but think it might have something to do with being vitamin deficient. Johnny did have a dexa scan done though and his bone density is normal.

Have you though about sealants? Johnny has not had a cavity since we have done them.
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
01-08-2013, 10:38 AM   #5
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Not alot of problems but yes, early cavities, fragile teeth, had to have teeth pulled because they wouldn't fall out and adult teeth were coming in sideways. I have read dental problems are common with IBDers and O's dentist and oral surgeon agree.

Also for some reason O's teeth just get more build up than my other kids. Faster too. According to dentist also thanks to IBD. Now she uses an electric toothbrush to help get a really good cleaning in.

Your theory is probably right Ang. Calcium & vitamin deficiencies.
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Vit d 2000IU
Multi vitamin plus iron

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
01-08-2013, 10:40 AM   #6
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Location: Plainville, Connecticut
Sarah's jaw is completely messed up and she needs orthodontics but we haven't got the budget for it yet. She also has teeth coming in sideways and some big gaps in her upper teeth on one side.

My teeth are so straight even with 30 years of Crohn's that dentists frequently ask if I've ever had braces.

So.. who the heck knows?
01-08-2013, 10:51 AM   #7
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Clash's Avatar
C has fragile teeth too, the build and we are scheduling dental appts to get a cavity fixed. We have dental insurance but it's not near as good as our health, I think since their CD can be affecting their teeth then health ins should cover that too!!!
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara

Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
01-08-2013, 12:15 PM   #8
my little penguin
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Ibd kid = no cavities
Other child - lets just say we are very familiar faces at the dentist including multiple sealants put on-ugh
DS - -Crohn's -Stelara -mtx
01-08-2013, 03:09 PM   #9
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Location: San Diego, California
Alex has had a few cavities in baby teeth, I'm not shocked, he has a huge sweet tooth like me. I think the vitamin deficiency could be an effect, and certainly, he's growing them slower. One of his front top baby teeth was twinned too (looked like two smaller teeth fused together), but the permanent one came in normal. Odd kid! I do think the electric toothbrushes do a better cleaning job.
Jennifer ~ son dx at age 8, Sep 2010
currently on Humira, Feb 2012+, MTX (25mg) Aug 2017+, folic acid
past use: 6mp for Sep 2010-Apr 2011 (not effective enough), then Remicade April 2011-Dec 2011 (built antibodies); additional 6MP Aug 2012-Sep 2013; Periactin for appetite Sep 2010-Sep 2013
other: Centrum chewable multi; calcium-vitD;
Derma-Smoothe for psoriasis rashes; Alrex, Zaditor eye drops for vernal conjunctivitis; history of asthma, ear infections
01-08-2013, 06:04 PM   #10
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Gab has perfect teeth ~ only had one tiny (not visible by the eye) cavity in a baby tooth.
She had braces, but her teeth weren't even that crooked before them.

JJ and Austin however, had awful baby teeth !
They both now have beautiful adult teeth, but Austin has had a ton of cavities in a lot of them as well

Our orthos opinion on JJ's bad baby teeth was because he was so sick with ear and upper respiratory infections until he was about 3 years old.

I'm with Muppet ~ who knows ! LOL
01-08-2013, 07:07 PM   #11
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It's what I get for not doing sealants last time. I was concerned about the BPA exposure (we don't do plastic food containers/cups for this reason).

It weirds me out that they use a machine to tell them if you have a cavity...whatever. THey tell me she has deeply pitted teeth and she will get more cavities without sealants.
01-09-2013, 05:12 AM   #12
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Location: New South Wales, Australia
No issues with cavities here Angie, neither have any fillings.

Dusty. xxx
Mum of 2 kids with Crohn's.
01-09-2013, 05:49 AM   #13
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Also for some reason O's teeth just get more build up than my other kids. Faster too.
Lot of build up here as well.

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