C
Cheshire cat
Guest
Hello everyone, my name is Emmy. I'm cheshire cat on account and I always have a big smile on my face (which can work against you when your trying to get people to take your suffering seriously). I'm 23 and married to an amazing man called Russ, he his the most understanding guy on the planet. I'm presently training to be a vet nurse but circumstances with my health had made it a struggle. Not everyone has been understanding and it has been a real embarrassment out and about.
I've been suffering with this illness for over 20 months. I became very ill after having an ovarian cyst removed, I had fever, severe abdo pains and diarrhoea. But naturally they assumed it was all to with my ovaries and not really looking anywhere else. For the following months my condition worsened, ridelled with infections and being pumped full of antibiotics, I began rectal bleeding and vomiting pretty much all day long. The pain was the worst thing, I was on morphine pretty much all the time and not really eating due to being scared of how I was going to feel towards the end of my meal.
They then sent me to almost every department in my local hospital having tests for everything under the sun. During my hospitalisation it was mentioned that I had fluid collecting in my pelvis and abdomen, inflamation throughout parts of my bowel, the list goes on a bit. I was told it could be lupus, severe IBS, ulcerative collitis, crohns and was screened for cancer and other nasties.
Apparently my blood showed I had a high level of white blood cells and raging body temps.
Following a six month stint in hospital, I had a colonoscopy and was told it was crohns due to a large amount of inflammation, but shortly after was told they were not sure. I then had a endoscopy where I was told I had it again but then nope...... You start to feel like its all in your head. They were very hush hush.
My condition became worse and worse. I would have accidents where I couldn't get to the loo with the 5 seconds notice my bowel would give me. My husband and mum would have to carry me to the toilet and help me bathe. I haven't been strong enough to lift my head but refused to go back to the hospital. I was pretty out of it lifeless on the toilet after hours of severe diarrhoea and heavy rectal bleeding. My weight plummeted then lifted a little for a while but back down again. I look like the walikng dead. He would carry me to the doctors to see if they could do anything for the pain or help me keep something down. He has been my guardian angel.
My GP has been amazing, she can't understand how they have left me for so long. They couldn't give me any treatments due to them not being certain. I have been told that numerous tests have come back negative. My GP thinks it is crohnies. She has now referred me to a specialist in London and he promises he will help me. He wants to start from scratch, my biopsys from my past tests have disappeared so he wants to see everything all himself which is great, being passed from pillar to post makes you lose the will to fight and makes you lose faith in Doctors. I have an endoscopy and colonoscopy on the 22nd Nov so fingers crossed. Any suggestions would be greatly appreaciated, thankyou for reading x
I've been suffering with this illness for over 20 months. I became very ill after having an ovarian cyst removed, I had fever, severe abdo pains and diarrhoea. But naturally they assumed it was all to with my ovaries and not really looking anywhere else. For the following months my condition worsened, ridelled with infections and being pumped full of antibiotics, I began rectal bleeding and vomiting pretty much all day long. The pain was the worst thing, I was on morphine pretty much all the time and not really eating due to being scared of how I was going to feel towards the end of my meal.
They then sent me to almost every department in my local hospital having tests for everything under the sun. During my hospitalisation it was mentioned that I had fluid collecting in my pelvis and abdomen, inflamation throughout parts of my bowel, the list goes on a bit. I was told it could be lupus, severe IBS, ulcerative collitis, crohns and was screened for cancer and other nasties.
Apparently my blood showed I had a high level of white blood cells and raging body temps.
Following a six month stint in hospital, I had a colonoscopy and was told it was crohns due to a large amount of inflammation, but shortly after was told they were not sure. I then had a endoscopy where I was told I had it again but then nope...... You start to feel like its all in your head. They were very hush hush.
My condition became worse and worse. I would have accidents where I couldn't get to the loo with the 5 seconds notice my bowel would give me. My husband and mum would have to carry me to the toilet and help me bathe. I haven't been strong enough to lift my head but refused to go back to the hospital. I was pretty out of it lifeless on the toilet after hours of severe diarrhoea and heavy rectal bleeding. My weight plummeted then lifted a little for a while but back down again. I look like the walikng dead. He would carry me to the doctors to see if they could do anything for the pain or help me keep something down. He has been my guardian angel.
My GP has been amazing, she can't understand how they have left me for so long. They couldn't give me any treatments due to them not being certain. I have been told that numerous tests have come back negative. My GP thinks it is crohnies. She has now referred me to a specialist in London and he promises he will help me. He wants to start from scratch, my biopsys from my past tests have disappeared so he wants to see everything all himself which is great, being passed from pillar to post makes you lose the will to fight and makes you lose faith in Doctors. I have an endoscopy and colonoscopy on the 22nd Nov so fingers crossed. Any suggestions would be greatly appreaciated, thankyou for reading x