I was diagnosised with Crohn's in Feb. 2011 (23 yrs old), after being hospitalized for an abscess in my small intestine. Things were confusing at this time and still are as I don't feel I have ever received any real answers. When I went to th Dr. the day I was diagnosised I was experiencing severe pain in my side and a low grade fever that lasted a week. I had been having irregularity and urgency problems prior to this and slowly they were running different test to determine what was going on. On this day they ran a CT scan and I remember clear as day the surgeon came in and said he has never seen a scan look like my scan and needed to get other opinions (later learned I had severe fistula forming Crohn's). I was dosed with antibiotics and put on a clear liquid diet for 1 week. i was discharged with follow up to see a GI specialist.
When I met with the specialist I was immediately put on Remicade, Imuran, and an assortment of vitamins . Throughout the eyar I was horrible at taking the imuran daily. I would miss several days and eventually stopped taking it. I continued with the remicade treatments every 2 months but stopped taking my other meds. I had regular bloodwork done which always came back normal. I had another scan done this past summer and I was told that things looked good and jsut keep doing what I am doing. I just went back to the Dr for a follow up last week and she now says she is not happy with my progress as my disease has been active and I have never reached remission in the past 2 years. So she now put me on a 30mg predisone tapering every 2 weeks regimen and another cipro rountine. I am to go back in a month and if things have yet to progress into remission she talked about doubling my remicade and/or starting a weekly shot of something... I am just frustrated as I don't have any major physical symptoms. My biggest complaint is my stomache growling constantly after eating and some pressure at times but nothing to complain about. No I don't want to end up having surgery but I also don't like taking several medications on a constant basis that do begin to effect how I work and think. Am I missing something and is this just pure denial??
I neve miss work but I am now home for the rest of the week with influenze sweeping through the house...
When I met with the specialist I was immediately put on Remicade, Imuran, and an assortment of vitamins . Throughout the eyar I was horrible at taking the imuran daily. I would miss several days and eventually stopped taking it. I continued with the remicade treatments every 2 months but stopped taking my other meds. I had regular bloodwork done which always came back normal. I had another scan done this past summer and I was told that things looked good and jsut keep doing what I am doing. I just went back to the Dr for a follow up last week and she now says she is not happy with my progress as my disease has been active and I have never reached remission in the past 2 years. So she now put me on a 30mg predisone tapering every 2 weeks regimen and another cipro rountine. I am to go back in a month and if things have yet to progress into remission she talked about doubling my remicade and/or starting a weekly shot of something... I am just frustrated as I don't have any major physical symptoms. My biggest complaint is my stomache growling constantly after eating and some pressure at times but nothing to complain about. No I don't want to end up having surgery but I also don't like taking several medications on a constant basis that do begin to effect how I work and think. Am I missing something and is this just pure denial??
I neve miss work but I am now home for the rest of the week with influenze sweeping through the house...