01-27-2013, 10:19 PM   #1
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Hope345's Avatar
Happy Days

It has been such a rough year for B, and it is nice to say she is finally doing so well right now.

I found this forum a few months ago and received more love and support here than I ever expected. I am so thankful to all of you.

She is taking her 7th Remicade treatment next week, continues Asacol and Cortifoam, and they are all working together, along with removing lactose to stop the inflammation and symptoms of Crohns Colitis.

She is going to continue doing home school until she starts high school in September and is able to do her homework and have energy like a 14 year old girl should have.

My husband and I are so happy to have our daughter back and contribute it all to the Lord. We have put her into his hands from the beginning and allowed Him to guide us.

I pray the best for all of you and your children.

Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues

Last edited by Hope345; 03-05-2013 at 11:40 AM.
01-27-2013, 10:34 PM   #2
Forum Monitor
Clash's Avatar
Such great news to hear!! It is so wonderful when they are feeling good and living their life!!
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara

Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
01-27-2013, 10:38 PM   #3
Jmrogers4's Avatar
so happy for Baylee and all of you may it continue forever

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
01-28-2013, 02:26 AM   #4
Angrybird's Avatar
Join Date: Nov 2011
Location: Cambridge, United Kingdom

My Support Groups:
I am so pleased to hear Baylee is doing well!

DX: Crohns July 2002
Surgery: Ileocecal Resection Sept 2011
Now:Tummy behaving itself and new mummy to baby Nicholas
Current Meds: 6-MP 75mg,B12 injections every 3 months
Previous Meds: Budesonide, Prednisone, Remicade, Pentesa,Hydroxychlorequine,Azathioprine (tried twice) and Methotrexate
01-28-2013, 05:53 AM   #5
Super Moderator
DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
This is so wonderful to read Julie. Long may it continue!

Dusty. xxx
Mum of 2 kids with Crohn's.
01-28-2013, 06:15 AM   #6
Super Moderator
afidz's Avatar
Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
Awesome to hear that your daughter is doing well! and just in time to start high school too! I hope she continues to do well!
Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Asacol HD
01-28-2013, 06:23 AM   #7
Senior Member
Lustforlife's Avatar
Join Date: Dec 2012
Location: Georgia
Go Baylee go!!!
01-28-2013, 06:34 AM   #8
Join Date: Jan 2013
Location: Northumberland, United Kingdom
That is amazing news about your daughter, 14 is far too young for her to have to go through something like this.

Hopefully she stays symptom free and can go on as normal into High School! Well done Baylee.
01-28-2013, 06:57 AM   #9
Senior Member
rollinstone's Avatar
Glad to hear she's doing well Julie!
01-28-2013, 08:01 AM   #10
Forum Monitor
Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

My Support Groups:

My husband and I are so happy to have our daughter back and contribute it all to the Lord. We have put her into his hands from the beginning and allowed Him to guide us.

I pray the best for all of you and your children.

AMEN! My hubby and I feel the same way for what the GOOD LORD has done for us!

Glad to hear she's doing better.
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
01-28-2013, 05:29 PM   #11
Forum Monitor
Hope345's Avatar
Love you all and thank-you

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