Hello all. So since the last post I have had a lower bowel series done. The notes from the radiologist read "Of the normal ileal mucosal pattern and signs of mucosal or submucosala 10 cm segment of evident nodular mucosal or wall thickening." The impression read ''abnormality of the terminal ileum with edema. Clinical correlation for infectious or inflammatory terminal ileitis recommended.''
Now I don't know about you but I about died! That to me was a death sentence. I then had a colonoscopy done and found in the second portion of the duodenum and the ileocecal valve/terminal ileum there was acute and chonic inflammation.
Now that really scared me but, as I keep reading these byopsy results it states '' No grabulomas are identified in any of the specimens to specifically diagnose Crohn's disease, however, the inflamtion could represent involvment by crohns disease. No spiral shaped bactiera charicteristic of Helicobacter speices are identified in the duodenal or gastric biopsies on immunostain. Epithelial dysplasia or malignancy is not seen.
Now that being said, what would you think about everything? I am not sure if I’m in denial or I’m just scared that they are going to diagnose me with something I don't have. I went to the ER last week because I had a bad belly ache and weird look poo. I just wanted to make sure that I wasn't dying because I really didn’t know what to expect.
The ER doc admits me in the hospital thinking he seen lesions on my liver in a CT scan. I get a ultra sound the next day and everything is fine. I just have inflammation in the ileum and I end up staying there for 8 days!! Mind you this whole time they have me on a liquid diet!! They don't understand why my stomach is hurting so bad, they were pumping me with so many steroids my belly couldn’t handle it. I also was taking pain meds and anti-nauseous meds.
I am a mother of four beautiful kids and I’m scared… one of my kids he is my step son and 3 years ago in March he lost his mother to this disease. I don’t know to this day why this has happened or the reason, but I feel in my heart it was for a reason and I hope that reason is to help everyone that struggles with this disease everyday of their lives.
Thank you so much for listening to me vent.
Love always
Jenny