Wow, you guys are fast and so informative! We are seeing the gastroenterologist next week, and he suggested (by phone) that we look into all the other options and discuss at that time. I'm not sure what he will recomend, but I've been concerned about the increased risk of cancer from many of these meds. I'm currently taking humira every week and 150mg of Azathiopprine for my two autoimmune disorders, and am tolerating them fairly well with side effects I can live with. Here it seems (as opposed to Scotland--or at least in our GI's office), they start with the biologics and move to the immunomodulators. I did well on remicade for several years, so that might be a good option for my daughter, although she is allergic to rats and the fact that the med is made from rat proteins makes me nervous. Yes--she has been tested for AZ use and apparently she can use it. Cimzia apparently is not approved for anyone under 18. So... any reasons why methotrexate, 6MP or Remicade would be better than the others? Any reason we should avoid one or the other?
And I am so excited by the info I am finding on this forum about LDN! I tried it with my son with autism a few years ago and he did not receive any benefit, but I had no idea it was used for crohn's! I cant tell you how helpful that information is! Just as an aside, I am looking into trying helminthic therapy. I am not eligible for a local study because I am taking humira, but if someday I have the funds to try it and my health improves, my daughter will soon follow. That's a lot of "if"s, of course...In the meantime, keep the info coming. It is really helpful! Also--a general question: how do I ensure that those of you that responded to me before will see my replies?