Permanent Ileostomy

Hi Everyone,

Last year I had my colon, rectum and anus removed because of the seriousness of my IBS. Initially I was suppose to have my ileostomy for just 6 months so that my colon can rest but as my doctors continue to run more test, I had other related conditions, pelvic floor dysfunction.

Needless to say, my colon was so badly diseased, (completely with mucus) and I developed diversion colitis so that is what led me to the removal of my large intestines.

I'm fairly educated with digestive disease because of the 7 years of pain and suffering, although want to learn more about treatments that are working for others and for those awful days that I lie in bed wishing someone would understand how difficult it is to live a healthy life.
Debra

Hi, Debra! Welcome to the forum!

How are you currently feeling?

I hope things go well for you. :hug:

Hello! Do you feel better because of the permanent ostomy? Are you on any meds now? I had my large intestine taken out and currently have a temporary ileostomy (2nd one). The rectum is next to go if I dont respond to tysabri or stelara. Did your energy get better after the surgery? Im just a college student so its been hard to stay motivated in school feeling crummy.

Hi Debra and welcome to the community I'm glad you joined!

You mention IBS. Is that what you're diagnosed with or do you have some form of IBD such as Crohn's disease?

Like Jack, I wonder if you're currently on any meds and how you're doing?

All my best to you!