Hi, I was hospitalised in August 2012. I had been ill for 11weeks. Lost a lot of weight, stopped eating then couldn't eat due to pain in my chest and then couldn't get out of bed.
After 11 days in hospital I was diagnosed with a severe form of Crohn's that the Professor said in his 33 years he has seen 3 similar cases. I'm not sure really what makes it any different to others suffering from this disease.
I was placed on prednisone and immunosuppressant medications. I wasn't getting any better and was booked in for further colonoscopy and endoscopes. During the time these procedures where due I was moving house, trying to care for my 3 chn and I started a clean eating diet (Michelle bridges) and my symptoms disappeared. I stopped taking my medications.
I still had odd flare ups, days here etc but nothing that worried me.
Two weeks ago, I started to go down hill, lost 5-6kilos, bowel movements between 15-30 a day, exhausted beyond belief, unable to work properly or care for my children and family, social life went out the window.
I forget to mention, horrific back pain and headaches and nausea.
I took Questrian Lite for a few days which seemed to bind my bowels but I've also given up on eating to some degree. Bit of fruit here, half a salad there but the thought makes me squeamish.
My glands started to swell and I was sleeping 12+ hrs a night and than another 4-6 during the day. My poor husband and children.
Went to doctors (I have just moved so not my regular GP) who took full bloods.
Sodium and Potassium down slightly but my C Reactive Protein is 11mg/l which he says is high. He says I'm sick and whilst it doesn't say it's my Crohn's he's presuming it is. He yelled at me for getting off my meds and says I now need to front my specialist.
He wants me to start again in 40mg prednisone and I see my specialist in two weeks.
I'm scared to start the pred again if its just a bug? In people's experiences does this sound like the start of another flare up?
After 11 days in hospital I was diagnosed with a severe form of Crohn's that the Professor said in his 33 years he has seen 3 similar cases. I'm not sure really what makes it any different to others suffering from this disease.
I was placed on prednisone and immunosuppressant medications. I wasn't getting any better and was booked in for further colonoscopy and endoscopes. During the time these procedures where due I was moving house, trying to care for my 3 chn and I started a clean eating diet (Michelle bridges) and my symptoms disappeared. I stopped taking my medications.
I still had odd flare ups, days here etc but nothing that worried me.
Two weeks ago, I started to go down hill, lost 5-6kilos, bowel movements between 15-30 a day, exhausted beyond belief, unable to work properly or care for my children and family, social life went out the window.
I forget to mention, horrific back pain and headaches and nausea.
I took Questrian Lite for a few days which seemed to bind my bowels but I've also given up on eating to some degree. Bit of fruit here, half a salad there but the thought makes me squeamish.
My glands started to swell and I was sleeping 12+ hrs a night and than another 4-6 during the day. My poor husband and children.
Went to doctors (I have just moved so not my regular GP) who took full bloods.
Sodium and Potassium down slightly but my C Reactive Protein is 11mg/l which he says is high. He says I'm sick and whilst it doesn't say it's my Crohn's he's presuming it is. He yelled at me for getting off my meds and says I now need to front my specialist.
He wants me to start again in 40mg prednisone and I see my specialist in two weeks.
I'm scared to start the pred again if its just a bug? In people's experiences does this sound like the start of another flare up?
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