- Location
- Northamptonshire
Hi everyone,
I'm new to the site, only joined yesterday but stumbled across it when I was googling some questions.
I have recently been diagnosed with crohn's (August 12) and still trying to get to grips with everything - it's so daunting!
I had been suffering with on and off diarrhea since May 11 upon coming back from a holiday to Ibiza (not your usual boozie one either) I put off going to the doctors for ages because it was barable, but it got towards the end of the year and I started to be in a considerable amount of pain.
I had several blood tests done, but due to having an IgA blood deficiency they could not tell from blood tests and referred me for a flexible sigmoidoscopy which the biopsys came back fine. However I obviously wasn't fine and I had lost 6stone in a matter of a few months, I was pale and exhausted!
Everything was then done as a matter of urgency, I had a CT scan, MRI scan and from the results of these was then sent for a colonoscopy. The doctor doing the colonoscopy could see and was 99% sure I had crohn's however had to wait for the biopsy results to confirm.
This was then all confirmed, however during my first procedure (flexible sigmoidoscopy) there was some concern as I had a small hole at my tail end that was weeping and my GOD it was painful.
After my colonoscopy the doctor referred me to a surgeon urgently because he was sure I had a fistula.
So just when I thought my ordeal was over; I'd finally been diagnosed and was trying to get my head around the mass of information, I was then told I needed to have an operation to remove the fistula. I was petrified!
The op went fine, and was completed in Dec 12 so I am still in the healing process at the moment but I am so much more comfortable.
I'm still trying to get my head around everything and try and find ways to manage the pain because it comes and goes in waves.
I am only on Budesonide and have just been taken off Adcal 3 tablets. However the pain and diarrhea is still pretty constant, every few days I'll get a spell and I am so pale and have no energy.
My Gastro Dr seems to think I'm doing well, I saw him yesterday but will I always have the pain and diarrhea or should the meds be stopping this?
So that's a little intro to me I'm so glad I've found this site, there are so many unanswered questions I've had that this can help with :heart:
Sam xx
I'm new to the site, only joined yesterday but stumbled across it when I was googling some questions.
I have recently been diagnosed with crohn's (August 12) and still trying to get to grips with everything - it's so daunting!
I had been suffering with on and off diarrhea since May 11 upon coming back from a holiday to Ibiza (not your usual boozie one either) I put off going to the doctors for ages because it was barable, but it got towards the end of the year and I started to be in a considerable amount of pain.
I had several blood tests done, but due to having an IgA blood deficiency they could not tell from blood tests and referred me for a flexible sigmoidoscopy which the biopsys came back fine. However I obviously wasn't fine and I had lost 6stone in a matter of a few months, I was pale and exhausted!
Everything was then done as a matter of urgency, I had a CT scan, MRI scan and from the results of these was then sent for a colonoscopy. The doctor doing the colonoscopy could see and was 99% sure I had crohn's however had to wait for the biopsy results to confirm.
This was then all confirmed, however during my first procedure (flexible sigmoidoscopy) there was some concern as I had a small hole at my tail end that was weeping and my GOD it was painful.
After my colonoscopy the doctor referred me to a surgeon urgently because he was sure I had a fistula.
So just when I thought my ordeal was over; I'd finally been diagnosed and was trying to get my head around the mass of information, I was then told I needed to have an operation to remove the fistula. I was petrified!
The op went fine, and was completed in Dec 12 so I am still in the healing process at the moment but I am so much more comfortable.
I'm still trying to get my head around everything and try and find ways to manage the pain because it comes and goes in waves.
I am only on Budesonide and have just been taken off Adcal 3 tablets. However the pain and diarrhea is still pretty constant, every few days I'll get a spell and I am so pale and have no energy.
My Gastro Dr seems to think I'm doing well, I saw him yesterday but will I always have the pain and diarrhea or should the meds be stopping this?
So that's a little intro to me I'm so glad I've found this site, there are so many unanswered questions I've had that this can help with :heart:
Sam xx