03-11-2013, 03:42 PM   #1
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Join Date: Oct 2011
Location: Michigan, USA
Post Op Appointment

Went to Rowans first post op appointment. Doctor said she is happy with Rowans progress. She does think her belly is a little bit distended but I told her this is how she has looked everyday since she has came home. She said if the pipes are working we will just give her more time and hope the distention is just gas, which she is passing daily. Next appointment is in 6 months. Hoping we can stay away. All in all it was a good trip.
03-11-2013, 04:43 PM   #2
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Aw Mary that's really good news the docs
Are happy with Rowan.
Hope all goes well for u both x
Currently on EN
Neacate LCP
Calcium sandos
Inhalers x3
Pred tapering
03-11-2013, 04:49 PM   #3
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Join Date: Apr 2012
Location: Michigan

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Wow, six months. That's great. I hope she continues to heal and do well.
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
03-11-2013, 04:52 PM   #4
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Location: Cincinnati, Ohio

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Great news!!! Keeping my fingers crossed it is 6 months before you need to see the Dr. again. xxxxx

Spring coming anytime soon up there?? We hit 70 in Cincinnati yesterday, makes everything seem a little bit better.
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
03-12-2013, 09:12 PM   #5
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Join Date: Oct 2011
Location: Michigan, USA
We had one good day, I at least took down the Christmas lights off the house. It is snowing again today but just dusting. Thanks everyone. She seems even more distended today so hoping I didn't jinx things by sending out a good note. I had been giving her iron but now I have stopped in fear it could be constipating her.
03-12-2013, 09:24 PM   #6
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I am so glad to hear the good news. Instead of regular iron check into Floradix. It is a natural liquid form of iron that is very gentle on the system. If you call the company and tell them her age, weight and her hct/ hgb they will tell you exactly what dose to use they are very nice. Here is a review of it:

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
03-12-2013, 09:53 PM   #7
Jmrogers4's Avatar
Glad she is doing well, 6 month till next appointment! That is great

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-13-2013, 04:20 PM   #8
Crohn's Mom
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Location: Florida

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Thank for the update ! So happy to hear that she is doing well
Mom to Gab (20)
DX: Crohn's 2/2010
and Austin (18)
DX: Crohn's 7/2013
03-13-2013, 08:09 PM   #9
To save time...Ask Dusty!
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Join Date: May 2010
Location: Kentucky

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Amen Mary! I hope you have no need to add anything for a great long while!
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
03-15-2013, 01:00 AM   #10
Holding It Together
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Join Date: Jan 2013
Location: North Central, Illinois

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I hope the change of iron does the trick...!
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
03-16-2013, 08:06 AM   #11
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Join Date: Nov 2010

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Im so glad, Mary. I hope you get a little time to breathe.


Mom to Claire - 11 going on 17

Dx JRA age 3, Crohn's age 6
Acute transverse myelitis at age 5

Started IVIG September 2016
Started Tacrolimus October 2016
Neurontin 100mg twice daily
Folic Acid
Calcium/D supplement
Daily Vitamin
Daily Probiotic

No more Enbrel, Stelara, Methotrexate, Allopurinal or 6MP

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