03-14-2013, 03:04 AM   #1
Join Date: Sep 2011
Location: seattle, Washington

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Cow's Milk?

Hey guys,

I'm curious to know whether you guys give your kid's cow's milk. I have Crohns but my kids do not. I've just started drinking raw goats milk myself and am wondering whether I should switch the kids off cow's milk given the links to paratuberculosis and Crohns per the article below:


The other one I wonder about is whether I should be filtering their water for fluoride given articles like the one below: http://www.sophiagubb.com/fluoride-c...son-generally/

03-14-2013, 03:17 AM   #2
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Sascot's Avatar
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My son has goats milk but we mainly started it because he used to have alot of hayfever and his nose/sinuses were always stuffy. Seemed to help so he stayed on it.
I would say if your kids don't mind the taste, then it's probably more convenient if you're all on the same milk.
As for the water, it's not something I've really thought about. Seem to remember reading somewhere that our local water board stopped putting flouride in the water because of issues.
03-14-2013, 05:19 AM   #3
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Mylittlesunshine's Avatar
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My daughter is allergic to milk and has crohns x
If ur kid like the Taste if goats milk like
Sascot said it would make it easier to
Have you all on same milk x
Currently on EN
Neacate LCP
Calcium sandos
Inhalers x3
Pred tapering
03-14-2013, 06:56 AM   #4
Lisa's Avatar
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Location: New York

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My mother bought goat's milk for a while, fresh from the farm. We also grew up on raw cow's milk. Well water, so no added anything besides what Mother Nature added.....

The goat milk seemed to agree with me more than cow milk.

30 plus years and counting with UC/Crohn's!
on remicade since 11/05

While my experiences may not be what everyone has had- I feel it is worthwhile to share any and all experiences that may be beneficial to others.
03-14-2013, 09:15 AM   #5
my little penguin
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Cow's milk here for my crohn's kid.
He is not allergic and it does not affect his ibd.
We had pulled it for a while - not difference for him.
Kids with Ibd need alot of calcium ( from pred use and just plain Ibd )
Cow milk is a good source of calcium for kids at least .
DS - -Crohn's -Stelara -mtx
03-14-2013, 09:40 AM   #6
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Goat's milk it wonderful. We used to buy it from the store BUT the store stuff has an after taste I don't care for. We don't have anyone that sells raw milk from goats around here.

My hubby refuses to milk more than he has to. Plus he hates goats!
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
03-14-2013, 10:04 AM   #7
my little penguin
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Keep in mind if your child is allergic ( not lactose intolerant )
To cows milk then there is a very high risk that they will also be allergic to other mammal milk ( except human ) since the proteins are very similar .
03-14-2013, 10:06 AM   #8
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Location: North East Coast - USA

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Cow's milk - lactose free.

For my Crohn's child and my lactose intolerant child.

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
Priesthood Blessings
03-14-2013, 11:13 AM   #9
Jmrogers4's Avatar
Cow's Milk for both boys - lactose free for Non-IBD and regular for IBD (he says the lactose free tastes different/sweeter). I use the lactose free for cooking or anything they will both be eating since even a little regular causes some pretty severe gastro issues for my younger son.

Interesting about the flouride, when the boys were little their dentist gave them flouride pills as our water had low levels of flouride

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-14-2013, 08:14 PM   #10
my little penguin
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No fluoride in the water here. Not by choice just what was..
03-15-2013, 12:48 AM   #11
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Cows milk here as well.

A few months ago my daughter was getting pain every time she drank milk.
We tried lots of different milks but they all caused her pain and she didn't like the taste of any of them.
Not long ago the pain just disappeared.
Daughter dx CD March2012...
(aged 14)

Currently on:
125mg Imuran

Dx Premature Ovarian Failure 2014

03-15-2013, 12:53 AM   #12
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Hope345's Avatar
Both my daughters drink fat free milk with lactose removed.
It is regular cows milk.

Has lots of protein, calcium and vitamins....

My daughter with Crohns I dont want to have the lactose for that, and my other daughter without Crohns is lactose intolerant.

I will buy almond milk everyonce in a while.
Daughter (age 17) diagnosed with Crohns Colitis/UC 1/2012 Mod/severe changed to U.C.: 11/7/2014 anemia:blood transfusion current: Flare, weaning from Prednisone, still bloating: Meds ,Pentesa: 2000mg twice daily, Vegan diet, mesalamine enemas .Previous: mercaptopurine, Remicade (13 treatments), Imuran, prednisone ), Flagyl, iron infusions, cortifoam,
Continue to be hopeful
Daughter: age 21, undiagnosed: GI issues
03-15-2013, 06:19 AM   #13
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cows milk for my son too, has had no problems at all. Although my husband also has crohns and although he can drink cows milk, he cant tolerate alot. x
03-15-2013, 12:11 PM   #14
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To start with I should say Liam (10) doesn't have a diagnosis, we are in the exploratory stage trying to wok out what's making him unwell (main symtoms, severe stomach pains, acid reflux, frequent dehydration.)

We use Lactose Free Cows Milk for drinking/cereal & Low Fat Leben Ayran (a liquid strained yoghurt) for cooking.

The water here is desalinated sea water which has no mineral to speak of and is slightly acidic. I only give Liam bottled natural mineral waters, that are alkaline and have lots of minerals, this seems to help prevent him getting so dehydration. The rest of us drink the desal. I've seen some discussion in the diet forum about whether purified watr is healthy or not. One example of this is: http://www.crohnsforum.com/showthread.php?t=42652
03-15-2013, 01:15 PM   #15
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Location: San Diego, California
Always did and Alex didn't seem to have problems with it and he's now on Lactaid, lactose-free version of cow's milk, GI said the lactose is a general bowel irritant. No idea if it's ever helped or not, but doesn't hurt.
Jennifer ~ son dx at age 8, Sep 2010
currently on Humira, Feb 2012+, MTX (25mg) Aug 2017+, folic acid
past use: 6mp for Sep 2010-Apr 2011 (not effective enough), then Remicade April 2011-Dec 2011 (built antibodies); additional 6MP Aug 2012-Sep 2013; Periactin for appetite Sep 2010-Sep 2013
other: Centrum chewable multi; calcium-vitD;
Derma-Smoothe for psoriasis rashes; Alrex, Zaditor eye drops for vernal conjunctivitis; history of asthma, ear infections
03-18-2013, 01:02 AM   #16
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Thanks for the thoughtful insights folks.

I have let the kids try Kefir in the past with mixed results, so I wasn't expecting they'd like Goats milk SCD yoghurt, but blow me down with a feather they actually like it!

The Raw goats milk we purchased didn't even taste "goaty" like the ones from the store. It would be wonderful if this could settle my daughter's tummy and stop the skin irritation she has on her butt and her eczema. Fingers crossed
03-18-2013, 04:44 AM   #17
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I have celiac and crohn's. As a kid I was lactose intolerant which resolved when I went gluten free, but then I discovered I'm actually allergic to milk as well. I'm allergic to sheep and goat milks as well.

My daughter doesn't have IBD or a milk allergy, and she eats a mix of regular cow milk dairy products (mostly string cheese) and the coconut milk ones I use. I don't buy regular cow/goat/sheep milk.
IBD (mostly likely Crohn's), Celiac Disease, and Multiple Food Allergies
03-18-2013, 06:42 PM   #18
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My son seems to tolerate lactose free cow's milk better than regular cow's milk so that is what he drinks. It tastes a bit different than regular milk so I add Milo or Ovaltine (chocolate powder with vitamins) and that goes over well. With regular milk he seems to sometimes be ok with it and other times he gets pain.
Son (age 13) diagnosed with Crohn's Feb. 2012.
Currently on Imuran and Sulfasalazine.

Also taking: TuZen probiotic and following a low FODMAP diet (not very strictly).

Past Treatments: Prednisone, Flagyl, Cipro, Pentasa, exclusive EN via NG tube (6 weeks), Prevacid, Iberogast (20 drops twice a day) and high doses of vitamin B2.

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