I am really concerned about my 12 yr old son. His endoscopies 3 weeks ago showed he has some inflammation in his small bowel.
Two weeks ago over the weekend he needed the toilet endless times, I am talking of maybe 15 - 20 times a day. His appetite had decreased dramatically. I informed the hospital, and they admitted him for 5 days. These were basically just monitoring him days.
In hospital he hardly ate. But to me this isn't being taken seriously. They say that the inflammation he has shouldn't cause the loss of appetite. The need for the toilet while in hospital went down to 4 -5 times a day. On the Thursday they started him on 40mg steriods a day, so we are now day 11 into them. He is also on 3000mg Pentasa a day.
Initially, for the first few days he responded to the steriods , he ate a little more and his energy levels went up slightly. I really thought we had turned a corner.
But for the past few days his appetite has decreased again, he is lucky to be taking in 1000 calories a day. He says he feels full really quickly and is getting stomach cramps. He has also been sick a few times, mostly bile. This has NEVER happened before. He has started going to the toilet more again, though this is more because he gets a "feeling" he needs to go rather than actually doing anything. He has no energy at all, he is not doing his usual after school activites as he just has no energy. These are things he has always really loved and he is usually such an active boy. He just looks so ill.
I feel he is detoriarting before my eyes, he has lost a huge amount of weight. In November he weighed 58kg, today he is 45kg.
We are back at the hospital for a check tomorrow, but I don't feel I can get through to these doctors just how ill my son is. I am taking photos with me this time to show the difference in his weight from November to now, to show them what he did look like.
I am so worried about him, I just don't know what to do. I know this is his crohns, but no one seems to want to help him.
Is there anyone who can throw some light on what the cause of this is? Something I can get the doctors to do something about?
Two weeks ago over the weekend he needed the toilet endless times, I am talking of maybe 15 - 20 times a day. His appetite had decreased dramatically. I informed the hospital, and they admitted him for 5 days. These were basically just monitoring him days.
In hospital he hardly ate. But to me this isn't being taken seriously. They say that the inflammation he has shouldn't cause the loss of appetite. The need for the toilet while in hospital went down to 4 -5 times a day. On the Thursday they started him on 40mg steriods a day, so we are now day 11 into them. He is also on 3000mg Pentasa a day.
Initially, for the first few days he responded to the steriods , he ate a little more and his energy levels went up slightly. I really thought we had turned a corner.
But for the past few days his appetite has decreased again, he is lucky to be taking in 1000 calories a day. He says he feels full really quickly and is getting stomach cramps. He has also been sick a few times, mostly bile. This has NEVER happened before. He has started going to the toilet more again, though this is more because he gets a "feeling" he needs to go rather than actually doing anything. He has no energy at all, he is not doing his usual after school activites as he just has no energy. These are things he has always really loved and he is usually such an active boy. He just looks so ill.
I feel he is detoriarting before my eyes, he has lost a huge amount of weight. In November he weighed 58kg, today he is 45kg.
We are back at the hospital for a check tomorrow, but I don't feel I can get through to these doctors just how ill my son is. I am taking photos with me this time to show the difference in his weight from November to now, to show them what he did look like.
I am so worried about him, I just don't know what to do. I know this is his crohns, but no one seems to want to help him.
Is there anyone who can throw some light on what the cause of this is? Something I can get the doctors to do something about?