03-22-2013, 03:40 PM   #1
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Join Date: Mar 2013

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So Proud of son!

Tomorrow my 14 year old son will be undertaking his 3rd charity event to raise funds for his hospital to provide things for the wards he uses. His first event raised 234 then last year his mini triathlon with 5 friends raised 2000 for televisions for the ward.

Tomorrow sees him and 10 friends cover the marathon dstance of 26.2 miles with a combination of swimming, cycling and running. He is unable to do all of these but he has organised it and will cycle and do a short run. His amazing friends(boys and girls) will help him out. they have reaised 1070 which my hubby can match pound for pound through work so he is over the 2000 mark again.

I just wanted to share as 1. these are 14 year olds who could say they can't be bothered 2. it is snowing here 3. teenagers CAN be amazing.

We know our crohns kids are amazing but his friends are supporting him all the way.

If you want to read his story www.justgiving.com/marathontriathlon

Don't give up anyone and doing something positive really helps him especially as he is giving something back to those who are helping him
03-22-2013, 03:48 PM   #2
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Johnnysmom's Avatar
Join Date: Oct 2011
Location: Cincinnati, Ohio

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That is awesome!! And truly what life is all about.

Thank you for the good news
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
03-22-2013, 03:49 PM   #3
Jmrogers4's Avatar
You have every reason to be proud of your son and his friends, that is amazing!

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-22-2013, 03:54 PM   #4
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Niks's Avatar
Join Date: Nov 2012
Location: Swindon, United Kingdom

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Oh wow!! What an amazing bunch of kids!!

Good luck to them all xx

Daughter 24, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteoporosis
Sacral Nerve Stimulator fitted Nov 17.

Peristeen Irrigation every day.
Self Catheterisation

Waiting for bowel stimulator!
03-22-2013, 04:16 PM   #5
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CeeCeeGo's Avatar
Join Date: Oct 2012
Location: Wirral, UK

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I love stories like this especially when all the media shows are young people causing trouble and not caring about others.
Good luck to all of them and huge respect

DX - June 2012 with mild/moderate Crohns. In July 2012 bowel perforated unexpectedly and needed emergency surgery.
Current meds/supplements - Stelara (Nov 2017), Budesonide (when required), B12 injections (every 10 wks), Vit D tabs 800iu x daily, Ferrous Sulphate 200mg every day, Folic Acid once a week
Previous meds - Allergic to Azathioprine, 6MP, Pentasa & Asacol, Methotrexate injections (didn't work). Stopped Humira after 2 years due to ineffectiveness.
03-22-2013, 04:27 PM   #6
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jmckinley's Avatar
Join Date: May 2012
Location: Alabama
AWESOME! You should be very proud!!
03-22-2013, 06:28 PM   #7
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Devynnsmom's Avatar
Join Date: Jan 2012
Location: Toronto, Ontario
Thats awesome!!
Samantha, AKA Devynn's mom

Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
03-22-2013, 06:42 PM   #8
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Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

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I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
03-22-2013, 06:49 PM   #9
my little penguin
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Join Date: Apr 2012

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DS - -Crohn's -Stelara -mtx
03-22-2013, 06:57 PM   #10
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Clash's Avatar
That is so awesome, I know you must be so proud!!
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara

Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
03-22-2013, 07:19 PM   #11
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Hope345's Avatar
I love that. What a great inspiration!!!
03-23-2013, 04:54 AM   #12
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DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
Wow!!! That is fabulous Mum!!!

What a champion your lad is and his friends are amazing! Well done guys!

Dusty. xxx
03-23-2013, 12:20 PM   #13
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They did it - what wonderful kids!!
03-23-2013, 12:23 PM   #14
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Join Date: Jan 2013
Location: North Central, Illinois

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So glad to hear it. I hope your local news station picked it up and shared it. You have every right to be proud of your son and those kids!
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.

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