Well, son has had his 2nd infusion this morning and all gone well. He is very chilled and relaxed about the whole thing, which i think is a good thing.
He has gained 1 kg in 2 weeks, which is good news, and a positive sign, he has been feeling hungry and wanting to eat, as a rule little and often and what ever he wants. He doesnt have any restrictions at all in his diet, i appreciate alot of people do find some foods triggers flare ups, however the hospital where son is being treated dont seem to feel this is the case for him, so basically eat what he like, the higher the calories the better, so i need to buy more at the supermarkets as he is munching away.
They had said, that the infliximab they find generally it takes children 6 months to feel really good, so dont expect to much to soon, so small steps and we will get there.
No answers for the burping he does, thinks it a male thing!
Bloods will be taken at each infusion and to keep an eye on how well azathioprine is working for him, as they have just had to reduce it, so close eye required.
So, son is feeling better and in a slightly more positive mood, he is also on easter holidays for 3 weeks, which will spent with the odd day out, if the weather picks up maybe go to the coast, fingers crossed we get some sun soon, had enough of the snow!!
He has gained 1 kg in 2 weeks, which is good news, and a positive sign, he has been feeling hungry and wanting to eat, as a rule little and often and what ever he wants. He doesnt have any restrictions at all in his diet, i appreciate alot of people do find some foods triggers flare ups, however the hospital where son is being treated dont seem to feel this is the case for him, so basically eat what he like, the higher the calories the better, so i need to buy more at the supermarkets as he is munching away.
They had said, that the infliximab they find generally it takes children 6 months to feel really good, so dont expect to much to soon, so small steps and we will get there.
No answers for the burping he does, thinks it a male thing!
Bloods will be taken at each infusion and to keep an eye on how well azathioprine is working for him, as they have just had to reduce it, so close eye required.
So, son is feeling better and in a slightly more positive mood, he is also on easter holidays for 3 weeks, which will spent with the odd day out, if the weather picks up maybe go to the coast, fingers crossed we get some sun soon, had enough of the snow!!
