Crohn's Disease Forum » Parents of Kids with IBD » Letter for school SAMPLE from improve care now

04-08-2013, 09:15 PM   #1
my little penguin
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Letter for school SAMPLE from improve care now

good sample letter for school for those on immuosuppressants
DS - -Crohn's -Stelara -mtx
04-08-2013, 09:17 PM   #2
my little penguin
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the rest of the links are found here

one for college dorms
SAT Tests etc....
04-08-2013, 09:22 PM   #3
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Mehita's Avatar
Join Date: Nov 2011
Location: Minnesota

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Thanks, MLP. Great resource!
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
04-09-2013, 09:02 PM   #4
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ChampsMom's Avatar
Join Date: Mar 2011
Location: North East Coast - USA

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That's great! I sent a letter to school with my youngest after I received a letter from the school complaining he missed too many days and they wanted to meet with me.

My response:

Re: Recommendation for Meeting to Improve Attendance

Dear (Name removed):

Thank you for your letter and recommendation that I schedule a meeting to develop a plan to improve my child’s attendance (copy of letter attached), however I must decline.
My son has had two (2) bouts of the flu this school year (stomach flu and “regular” flu) which had led to him missing school the bulk of the days mentioned in the letter. At 3 ˝ he is not skipping school and I am not inhibiting his attendance by not bringing him when he is healthy. All his absences are excused due to health reasons.

On that note, it would be great for the school to send out reminders to parents to please keep their children home when they have a fever and not send them to school on fever reducing medicines. Also, reminding parents that a child should not return to school until 24 hours have passed after the fever has broken. I currently have two (2) children attending classes in this County and one (1) child who is homeschooled through the Home and Hospital Program due to a chronic disease. Because of this we take great care in trying to ensure we do not spread illnesses haphazardly. I would be grateful if you would remind other parents to do the same.

Have a great day.

(Harsh?) Oh well - sent

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
Priesthood Blessings
04-09-2013, 09:07 PM   #5
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Join Date: Mar 2012
Location: California

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You go Champsmom!

Harsh? Not one bit. Very professional and to the point. But then again I am the nasty city girl so maybe my view is skewed
Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Vit d 2000IU
Multi vitamin plus iron

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
04-11-2013, 01:35 AM   #6
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Join Date: Jan 2013
Location: North Central, Illinois

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CM, I like it! Honestly, though, I am eating crow as not too long ago we got a letter asking us to keep our kids home for simple cold symptoms (coughs and runny noses). I scoffed at it thinking that my kids would constantly be home since they are always fighting colds, etc. Now I have a daughter on immunomodulator and I can fully see the wisdom of it!
J's story:
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
04-12-2013, 07:04 AM   #7
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DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
Oh well done ChampsMom!

Your letter is just right. It is clearly written and straight to the point so there is no room for misinterpretation. If you give them an inch they will take mile but you closed that gate very nicely indeed!

Dusty. xxx

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