04-14-2013, 10:48 PM   #1
Join Date: Feb 2013
Non stop hunger..

does it ever end? starting at 8am, till 8pm non stop feedings every two hours. my daughter has always been very very slim/skinny but at this rate shes going to turn into a house! ;-)

shes on pantasa, so its not the meds making her hungry I think..
04-15-2013, 01:01 AM   #2
Holding It Together
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Join Date: Jan 2013
Location: North Central, Illinois

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Sounds like a problem I wish my daughter would get... She still has not appetite
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
04-15-2013, 02:47 AM   #3
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Maree.'s Avatar
Join Date: Jan 2013
Location: United Arab Emirates

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My healthy child (14) has sufferred from non stop hunger for the last four years. What he eats is simply staggering, but I think that's just part of being a healthy teen. I make sure that what I'm feeding him is healthy and he gets plenty of exercise. He he has no issues at all his weight (very healthy body shape and BMI.)

As long as your daughters diet is healthy, her digestive system is coping with the food intake and her BMI is with in normal range for her age, I don't see constant hunger as a problem.

Like Carolin I'd love to see my younger one have this issue.
04-15-2013, 04:44 AM   #4
Senior Member
rollinstone's Avatar
I was like that on pred, now I've got no appetite
04-15-2013, 05:18 AM   #5
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upsetmom's Avatar
Join Date: May 2012
Location: New South Wales, Australia

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My daughter eats all the time too .
Its school holidays here...today she woke up at 11am had breakfast at 11.30 ...then at 12 she said its lunch time now....and she ate again.
Daughter dx CD March2012...
(aged 14)

Currently on:
125mg Imuran

Dx Premature Ovarian Failure 2014

04-15-2013, 05:45 AM   #6
Senior Member
A has an outstanding appetite too. Always has. When people see her eat I know they are probably thinking...."Look at that scrawny child scarf that food down. I bet her parents don't feed her the way they should." I have a feeling food goes straight through her, lol.
04-15-2013, 05:50 AM   #7
To save time...Ask Dusty!
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Join Date: May 2010
Location: Kentucky

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Wow Fox, I just read your intro post! I can see how her appetite could cause you some issues. What have you settled on to feed her ferocious appetite?? Have you tried any nutritional supplement drinks ie. Boost, Ensure etc.?
Mark, father of EJ

EJ dx w/ Crohn's 12/09
PSC 3/10

No more 6mp
Currently in the Humira Club
04-15-2013, 08:10 AM   #8
Senior Member
Brian'sMom's Avatar
Join Date: Dec 2010
Location: Kansas

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Was she underweight before? How old is she? I agree with the others in wishing my son's appetite would kick in, but flip side; a meal every 2 hours would get to be a nuisance tho! I agree with Mark, have you tried nutritional drinks?
Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
04-15-2013, 08:59 AM   #9
Join Date: Feb 2013
she is 7 and no, sugars don't work well with her right now.. she seems to be very senstive to them, and we don't do dairy.. so that leaves us with out many choices.
04-15-2013, 09:00 AM   #10
Join Date: Feb 2013
yes always underweight, she just hit 50pounds for the first time a week ago!
04-15-2013, 10:03 AM   #11
Senior Member
A is 8 and thanks to Periactin has gained a few pounds. She was at a 3 lb. weight gain but lost a lb. over the weekend and is back down to 46 lbs. She swears she's going to ride in her booster seat to graduation! lol
04-15-2013, 01:52 PM   #12
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ChampsMom's Avatar
Join Date: Mar 2011
Location: North East Coast - USA

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Our GI told us LOTS of small meals all day long - and my son has taken that advice to heart! He starts when he wakes up and an hour doesn't go by that I don't see him standing in front of the icebox looking for something else to eat! He doesn't do regular dairy as he is low sugar also, so we go with the lactose free and he eats lots of pasta...

I'd say if she can tolerate it - it is okay - she is probably thrilled to be eating and not feeling sick about it!

Mom of Champ (Alex)
Dx: CD April 2010
Meds: 04/25/13 switched back to Pentasa 3,500mg/day - Lialda brought lower abdominal cramps & exhaustion); 04/05/13 switched to Lialda 1.2GM 3 pills/day verse Pentasa 3,500mg/day, prevasaid 15 mg x 1/day, elemental iron, daily vitamin, calcium w/mag D, 50,000 mg Vitamin D/week, B12, B6 supplements, Cetrizine (for sinus issues)
Priesthood Blessings
04-15-2013, 02:01 PM   #13
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Devynnsmom's Avatar
Join Date: Jan 2012
Location: Toronto, Ontario
Devynn has always eaten non stop all day long. She's so tiny, that I don't think people really believe me! lol But the last few mos her appetite has slowed right down.
Samantha, AKA Devynn's mom

Devynn (12 years old) was *unoficially* diagnosed with Crohn's disease in Dec 2009.
That diagnosis was changed to Ulcerative Colitis in Mar 2012.
Pentasa ASA Dec 2009-Mar 2012 (dosage tweaked a couple of times)
Mezavant Mar 2012- Nov 2012
Sulfasalazine-Nov 2012
04-16-2013, 04:26 PM   #14
Senior Member
xSophiexx's Avatar
Join Date: Jun 2012
Location: Kent, United Kingdom
As she is underweight perhaps her body just 'needs' it?? may sound silly but a bit of extra weight behind her wouldnt hurt? i have been told many times that several small meals better than 3 big ones also food should be filling i.e. protein (turkey chicken eggs) or slow release carbs. obvs dependant on what does / doesn't agree with her. good luck x
Diagnosed CD May 2012
Ileum and Jejunum

Ileocaecal Resection 12th June 2013


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