Hi,
I am new to the forum and looking for any advice/help regarding Celiac and lymphocytic Colitis. I was misdiagnosed for 5 years and recently found out I actually do have Celiac (after three doctors told me I do not). Now along with Celiac I was also diagnosed with Lymphocytic Colitis. I have been gluten free for a year now with no relief. After my initial Lymphocytic colitis diagnosis I was put on entocort with no relief and then on pepto with no relief. After the diagnosis I moved to NYC for work and now am in the process of establishing a new GI doctor. I went to Dr. Cohen the other day at Concorde medical group and have now been asked to complete even more tests. My goal in establishing a new GI in NY was to hopefully be referred to a nutritionist that can work with me on diet since medicine did not seem to work in the past. Dr. Cohen said he would gladly put me with a nutritionist but he wants to complete other tests first to make sure I even still have colitis. This was all very disappointing because I felt like I finally got a diagnosis and now it could be different. I discussed that I have been on the SCD diet minus dairy for over a month now and have not seen any change, he did not acknowledge the diet of course. He did a blood test while I was there and it came back positive for a peanut/sesame allergy.
All in all I am at a loss, I felt like going on this strict SCD/Paleo diet would help with my diarrhea/non-bulky stools, pure exhaustion, muscle pains but I have not seen any relief yet. I have only felt worse and more depressed because now I can't eat much and am not feeling any better. Has anyone else had the same non-result when starting paleo/scd? Am I doing the wrong diet?
I am new to the forum and looking for any advice/help regarding Celiac and lymphocytic Colitis. I was misdiagnosed for 5 years and recently found out I actually do have Celiac (after three doctors told me I do not). Now along with Celiac I was also diagnosed with Lymphocytic Colitis. I have been gluten free for a year now with no relief. After my initial Lymphocytic colitis diagnosis I was put on entocort with no relief and then on pepto with no relief. After the diagnosis I moved to NYC for work and now am in the process of establishing a new GI doctor. I went to Dr. Cohen the other day at Concorde medical group and have now been asked to complete even more tests. My goal in establishing a new GI in NY was to hopefully be referred to a nutritionist that can work with me on diet since medicine did not seem to work in the past. Dr. Cohen said he would gladly put me with a nutritionist but he wants to complete other tests first to make sure I even still have colitis. This was all very disappointing because I felt like I finally got a diagnosis and now it could be different. I discussed that I have been on the SCD diet minus dairy for over a month now and have not seen any change, he did not acknowledge the diet of course. He did a blood test while I was there and it came back positive for a peanut/sesame allergy.
All in all I am at a loss, I felt like going on this strict SCD/Paleo diet would help with my diarrhea/non-bulky stools, pure exhaustion, muscle pains but I have not seen any relief yet. I have only felt worse and more depressed because now I can't eat much and am not feeling any better. Has anyone else had the same non-result when starting paleo/scd? Am I doing the wrong diet?