Hoping to hear the word remission on my nxt appointment

Hi everyone. I've just signed up to the forum. I would like to say how glad I am to find somewhere that I can talk to people about my condition without worrying my family or friends.

Hi Stacey,
It is nice to have a place to come and talk to other people that understand what you're going through, isn't it? Dealing with gut issues is not easy and not really a topic a lot of people want to hear about. I've only been on here short while myself but it sure has been helpful already to be able to openly discuss whatever. There's always someone who understands, or has information, or can answer questions or offer advice! How long has it been since your diagnosis?

Hey. Thank u for replying. Yes I totally agree, my family have been a great support for me since getting my diagnosis. But they truly don't understand what I really go throu. I was diagnosed August 2011, 4 months after I had my daughter. I've had problems with my tummy since 2002 after having my son. I fought and fought for help but I was just palmed off with IBS medication and anti depressants. Its been a tough year for me thou, but now I have a diagnosis and an amazing specialist, I've finally come to terms with it, and am working hard to keep my flare ups to a minimum. I'm hoping to b able to have my rants on here and not have to worry my family really. How are u doing?

I'm having some issues right now, but my doc is unsure about confirming my original Crohn's diagnosis so I'm starting testing. This week is blood tests and CT. Hopefully some answers from those but if not, I'm not sure what's next. He wants to look at the original documentation from my diagnosis. I'm having trouble with burning pain in my right side, and it gets much worse when I eat the wrong things for sure. I'm lactose intolerant, so I know I can't do milk products for sure. So far I don't react well to gluten, raw veggies, or sugar. I tried a Kind bar this afternoon, which is gluten-free and dairy-free, but made of nuts. I'm waiting to see over the next 24 hours what kind of results I have from that. It's challenging because there's so little I can eat right now that I'm having trouble keeping weight on.
I'm so glad to hear that you finally have a diagnosis and a good, supportive doc! that can really make the difference. Rant away on here because that's what we're here for!

I'm so sorry to hear that ur still going throu tests. I get so fed up with being poked and prodded all the time. I had a CT scan before xmas and it showed up that I have a hietus hernia, also had a MRI scan in January that showed up I also have signs of IBS. Its never ending. I've been on so many different cocktails of drugs. My new cocktail and strict diet seem to be doing the trick at the moment. The one thing I really sruggle with is my tiredness. I'm a working mum of 2, and also doing an apprentiship. So my life is non stop. My iron levels I've been told are dagerously low as well as my B12. I can't take iron tablets or liquid iron as it makes me constipated. So I'm fighting now to get the iron/B12 injections, I have to wait till August for a decision. Have u had to habve any surgery due to Crohns? I dread the day they say ill need surgery.

Hey Stacy,

Why in the world do you need to fight to get iron infusions? If you got low iron/ferritin levels and can't take oral supplements you get infusions. That's what every GI would normally do.

Hi stacy and welcome to the forum. I KNOW you will find the support you are looking for here.

I saw that you were in chat today lookng to talk to someone, sorry but its been a bit slow in there the last week, BUT, there is someone around most evenings from about 5-8 PST, (California time) The chatrom is a GREAT place to get started around here, you can ask questions in real time and most of the people there know a fair bit about crohns.

Hope to see ya soon.

Jim
(Pops)

Hi Alex...I know I shouldn't have to fight should I? My GP was going to give me iron strips, they r strips of iron that disolve under the tongue but was told that they was too expensive. I know I was as shocked as u are. :ymad: spoke to my GP about the injections as I done my research on them and they are ideal for patients with IBD. He said that his surgery does not do them and have to speak to my specialist about them. I see him again in August.

Hiya Jim. Thank u for posting on my forum. I'm so pleased to have people to chat to now. I've worked so hard the past year to b pain free. Don't get me wrong I have days where I eat the wrong thing or get so stressed I feel a flare up on the way. But I'm more pain free than not these days, and I cherish the days I feel amazing, as I was in constant pain for 10 years before I was diagnosed. Hearing the word remission would show that my hard work is paying off.

If you got really low iron levels and have signs of anaemia (pale, tiredness, short of breath) I wouldn't wait until August. Untreated anaemia can eventually be dangerous, not to mention that you want to feel better...

It's funny how two different people react completely differently to the same thing! I found that when I was taking iron supplements I got diarrhea from them so had to stop. Which is odd because I tend more toward constipation generally. I had one exploratory lap with appendectomy, but that's it. I remember it was not a fun experience at all! I hope that you don't have to have surgery. I have only ever been on Prednisone for meds. My current doc seems to think I need more tests before he can determine what exactly is wrong. Meantime I am working on my elimination diet, which as I have found, I need to stick to or I really pay for it.